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癌症诊断和预后的保密:对未来研究和实践的建议。

Nondisclosure of a cancer diagnosis and prognosis: Recommendations for future research and practice.

作者信息

Chittem Mahati, Maya Sravannthi, Chawak Shweta

机构信息

Department of Liberal Arts, Indian Institute of Technology Hyderabad, Telangana, India.

出版信息

Indian J Cancer. 2021 Apr-Jun;58(2):158-164. doi: 10.4103/ijc.IJC_740_19.

Abstract

Nondisclosure of a cancer diagnosis and prognosis is a common practice in many family-centric cultures wherein cancer is viewed negatively, resulting in family carers opposing truthful communication to patients. Oncologists comply with this request for diagnosis and/or prognosis nondisclosure owing to the cultural milieu, often choosing to describe the disease in less threatening terms such as "tumor" or "fever." This review provides a snapshot of existing research exploring diagnosis and prognosis disclosure and nondisclosure from the perspectives of the oncologists, family carers, and the patient with a particular focus on the psychological outcomes for patients who are aware versus not aware of their diagnosis and/or prognosis. Further, this review makes recommendations for future research and practice in cancer diagnosis and prognosis communication in India (e.g., communication skills training for family carers and healthcare providers).

摘要

在许多以家庭为中心的文化中,不向患者透露癌症诊断和预后情况是一种常见做法,在这些文化中,癌症被视为负面事物,这导致家庭照顾者反对向患者如实告知病情。由于文化环境的原因,肿瘤学家会顺应这种不透露诊断和/或预后情况的要求,常常选择用威胁性较小的术语来描述疾病,比如“肿瘤”或“发热”。本综述简要介绍了现有研究,这些研究从肿瘤学家、家庭照顾者和患者的角度探讨了诊断和预后情况的披露与不披露,特别关注了知晓与不知晓自己诊断和/或预后情况的患者的心理结果。此外,本综述还为印度癌症诊断和预后沟通方面的未来研究与实践提出了建议(例如,为家庭照顾者和医疗服务提供者提供沟通技巧培训)。

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