Department of Nephrology, Chang Gung Memorial Hospital, Chiayi, Taiwan.
School of Nursing & Neuroscience Research Center, Kaohsiung Medical University, Kaohsiung, Taiwan.
J Clin Nurs. 2020 Oct;29(19-20):3812-3821. doi: 10.1111/jocn.15412. Epub 2020 Jul 27.
To examine the relationship between illness representations and quality of life and to test whether illness representations can predict quality of life, in patients with haemodialysis.
Illness representations are interpretations of and actions taken by individuals when faced with threats to their health. Exploring relationship of illness representations and quality of life in patients with haemodialysis may help patients self-manage their illness and improve their quality of life.
A cross-sectional correlation design was used (the checklist STROBE was chosen for this study). The study setting was a haemodialysis centre in a teaching hospital. A total of 172 surveys were completed. The inventory comprised demographic data, illness data, the Brief Illness Perception Questionnaire and the World Health Organization Quality of Life.
The illness representations of the surveyed patients fell in the middle range of being not too optimistic or pessimistic. Overall quality of life of patients is moderate. The predictors of quality of life included living status, source of income and two illness representation elements.
This study revealed an association between illness representations and quality of life in patients with haemodialysis. New knowledge provided by this study can assist healthcare professionals caring for patients with a Chinese cultural background.
Illness representation assessment could be added to clinical care standards, and patients living with family or without family could be given different interventions.
探讨血液透析患者疾病观念与生活质量之间的关系，并检验疾病观念是否可以预测生活质量。
疾病观念是个体在面对健康威胁时对疾病的解释和采取的行动。探索血液透析患者疾病观念与生活质量的关系，可能有助于患者自我管理疾病，提高生活质量。
采用横断面相关性设计（本研究选择了 STROBE 清单）。研究地点为教学医院的血液透析中心。共完成了 172 份调查。调查问卷包括人口统计学数据、疾病数据、简要疾病感知问卷和世界卫生组织生活质量量表。
调查患者的疾病观念处于不乐观也不悲观的中等范围。患者的总体生活质量处于中等水平。生活质量的预测因素包括居住状况、收入来源和两个疾病观念元素。
本研究揭示了血液透析患者疾病观念与生活质量之间的关联。本研究提供的新知识可以帮助照顾具有中国文化背景的患者的医护人员。
疾病观念评估可以添加到临床护理标准中，对于与家人同住和不同住的患者可以给予不同的干预措施。
