Hospital Universitari Mútua Terrassa, Tarrasa (Barcelona), España; Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBEREHD), Madrid, España.
Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBEREHD), Madrid, España; Hospital Clinic i Provincial de Barcelona, IDIBAPS, Barcelona, España.
Gastroenterol Hepatol. 2020 Nov;43(9):551-558. doi: 10.1016/j.gastrohep.2020.05.007. Epub 2020 Jul 14.
The ENEIDA registry, promoted by the Spanish Working Group on Crohn's Disease and Ulcerative Colitis (GETECCU), was created in 2005 by a group of gastroenterologists interested in improving the management of patients with inflammatory bowel disease. The main objectives of the registry were to facilitate the collection of clinical data of interest for clinical care practice, as well as to carry out collaborative studies using clinical data and biological samples. In its 15 years of existence, ENEIDA has evolved in many aspects, from its content or technological support to the number of participating centres, to become one of the reference registries for the study and care of patients with inflammatory bowel disease, with a continuous and high quality scientific production that has positioned it as an example of collaborative scientific exploitation at an international level. This article reviews the objectives, design, structural characteristics, monitoring and scientific exploitation of the ENEIDA registry.
ENEIDA 注册表由西班牙克罗恩病和溃疡性结肠炎工作组（GETECCU）于 2005 年创建，由一群对改善炎症性肠病患者管理感兴趣的胃肠病学家组成。该注册表的主要目标是促进收集对临床护理实践有意义的临床数据，并利用临床数据和生物样本开展合作研究。在其 15 年的存在期间，ENEIDA 在许多方面都有所发展，无论是从内容或技术支持，还是从参与中心的数量方面，它都已成为炎症性肠病研究和护理的参考注册表之一，具有持续的高质量科学产出，将其定位为国际合作科学开发的典范。本文回顾了 ENEIDA 注册表的目标、设计、结构特征、监测和科学开发。
