J Pediatr Health Care. 2020 Sep-Oct;34(5):453-461. doi: 10.1016/j.pedhc.2020.05.002. Epub 2020 Jul 14.
The purpose of this study was to explore communication with health care providers from the perceptions of parents before their child's diagnosis of autism spectrum disorder and provide some examples of how communication may contribute to the autism diagnosis.
This study used a qualitative descriptive design with multiple individual structured in-person interviews.
Three themes captured parents' (n = 8) descriptions of the phases of communication during their children's diagnoses including, (1) anguished questioning, (2) urgently seeking help, and (3) expecting a diagnosis. In addition, three themes characterized the communication style that parents needed, although not always received, in each of the periods of diagnosis including (1) compassionate curiosity, (2) acknowledgment and affirmation, and (3) engagement with parents.
Results point to opportunities for pediatric providers to use a more empathic and engaging communication style during the diagnostic process with better identification of education and support needed by parents and families.
本研究旨在探讨自闭症谱系障碍患儿父母在诊断前与医疗保健提供者的沟通情况，并举例说明沟通如何有助于自闭症的诊断。
本研究采用了定性描述设计，对 8 名父母进行了多次单独的结构化面对面访谈。
三个主题捕捉到了父母（n=8）在孩子诊断过程中沟通阶段的描述，包括（1）痛苦的质疑，（2）紧急寻求帮助，以及（3）期待诊断。此外，三个主题描述了父母在诊断期间需要但并不总是得到的沟通方式，包括（1）富有同情心的好奇心，（2）承认和肯定，以及（3）与父母的互动。
研究结果表明，儿科医生在诊断过程中可以采用更富有同理心和互动性的沟通方式，更好地了解父母和家庭的教育和支持需求。
