Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands.
Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands; Department of Neurobiology, Care sciences and Society, Karolinska Institutet, Stockholm, Sweden.
J Am Med Dir Assoc. 2020 Nov;21(11):1609-1616.e1. doi: 10.1016/j.jamda.2020.05.009. Epub 2020 Jul 14.
This exploratory study aimed at investigating profiles of care needs in people with mild to moderate dementia and examined variables associated with these profiles.
A longitudinal international cohort study.
The baseline data of 447 community-dwelling dyads of people with dementia and their caregivers from the Access to Timely Formal Care (Actifcare) Study were included for analysis.
A latent class analysis was applied to identify profiles of needs, measured with the Camberwell Assessment of Need for the Elderly as rated by the caregiver. We examined sociodemographic (eg, relative stress scale) and clinical characteristics (eg, neuropsychiatric inventory) associated with these profiles.
Four distinct need profiles were identified through latent class analysis. These comprised a "no need" profile (41% of the sample), a "met psychological needs" profile (25%), a "met social needs" profile (19%), and an "unmet social needs" profile (15%). A larger impact of caregiving on the caregiver's life as indicated by a higher relative stress scale score was associated with the "unmet social needs" profile.
In this large European sample, there was a subgroup of persons with dementia with high "unmet social needs" whose caregivers simultaneously perceived high stress in their caregiving tasks. Identification of these profiles may help provision of appropriate support for these people.
本探索性研究旨在调查轻度至中度痴呆患者的护理需求特征，并探讨与这些特征相关的变量。
一项纵向国际队列研究。
纳入了来自及时获得正规护理（Actifcare）研究的 447 对患有痴呆症的社区居住者及其护理者的基线数据进行分析。
应用潜在类别分析来确定需求特征，使用照顾者评定的 Camberwell 老年需求评估量表来衡量。我们检查了与这些特征相关的社会人口统计学（例如，相对压力量表）和临床特征（例如，神经精神疾病评定量表）。
通过潜在类别分析确定了四个不同的需求特征。这些特征包括“无需求”特征（样本的 41%）、“满足心理需求”特征（25%）、“满足社会需求”特征（19%）和“未满足社会需求”特征（15%）。相对压力量表评分较高表明照顾者的生活受到更大的照顾影响，与“未满足社会需求”特征相关。
在这个大型的欧洲样本中，存在一个亚组的痴呆症患者有较高的“未满足社会需求”，其照顾者同时在照顾任务中感受到较高的压力。识别这些特征可能有助于为这些人提供适当的支持。
