Patient Advocate Foundation/National Patient Advocate Foundation.
Patient Advocate Foundation/National Patient Advocate Foundation.
J Natl Med Assoc. 2020 Oct;112(5):503-506. doi: 10.1016/j.jnma.2020.03.005. Epub 2020 Jul 16.
Transparency about the costs that patients incur is an increasingly important factor in making decisions throughout the course of diagnosis and treatment. Both patients and providers regard honest, informed discussions about these costs as critical to providing person-centered care, but often encounter a range of barriers to initiating and maintaining these conversations. The Patient Advocate Foundation/National Patient Advocate Foundation with partial funding from the Robert Wood Johnson Foundation has conducted both quantitative and qualitative research with patients and providers designed to identify key issues related to cost of care discussions. These include components of financial toxicity for patients, both related to direct costs and to quality of life, as well as questions as to who should initiate these conversations, when they should take place, and what kind of information and training are needed to make these conversations meaningful. This article reports the results of this work with recommendations for providers about how to incorporate cost of care discussions into the normal clinical work flow and patient life flow.
透明度关于患者承担的费用是一个日益重要的因素在做出决策的过程中诊断和治疗。患者和提供者都认为诚实的，关于这些成本的知情讨论是提供以患者为中心的护理的关键，但经常遇到一系列的障碍，以启动和维持这些对话。病人倡导基金会/国家病人倡导基金会与罗伯特·伍德·约翰逊基金会的部分资助进行了与患者和提供者的定量和定性研究旨在确定与护理成本讨论相关的关键问题。这些包括患者的财务毒性的组成部分，既与直接成本有关，也与生活质量有关，以及谁应该发起这些对话，何时进行对话，以及需要什么样的信息和培训才能使这些对话有意义。本文报告了这项工作的结果，并为提供者提供了关于如何将护理成本讨论纳入正常临床工作流程和患者生活流程的建议。
