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澳大利亚患者对痛风影响的看法。

Australian patient perspectives on the impact of gout.

机构信息

St Vincent's Clinical School, UNSW Sydney, Sydney, NSW, Australia.

Department of Clinical Pharmacology & Toxicology, St Vincent's Hospital, Darlinghurst, NSW, Australia.

出版信息

Int J Rheum Dis. 2020 Oct;23(10):1372-1378. doi: 10.1111/1756-185X.13934. Epub 2020 Aug 10.

Abstract

OBJECTIVE

To explore the perceptions of patients toward the impacts of gout, in an Australian context.

METHODS

Semi-structured interviews were conducted with Australian patients with gout (n = 17). Interviews focused on the impacts of gout on patients' day-to-day lives. The interviews were audio-recorded, transcribed verbatim and analyzed thematically by 2 independent reviewers.

RESULTS

Patients with gout reported variable but significant impacts of gout on their daily lives. Patients were primarily concerned with the pain and poor mobility associated with gout flares. Participants also reported significant social impacts related to their inability to attend events and the need for family and friends to look after them. Productivity was also negatively affected due to pain and poor mobility, and emotional wellbeing was reduced both by the symptoms of gout flares and anxiety between flares. Diet, daily planning, hobbies, exercise, sleep and selection of attire were also reported as being impacted by their gout.

CONCLUSIONS

In Australia, gout has significant and preventable impacts beyond the physical symptoms of gout flares, across a variety of domains. By identifying patients' key concerns, this can potentially aid clinicians to tailor gout education and encourage medication adherence, in order to improve gout management.

摘要

目的

在澳大利亚背景下,探索患者对痛风影响的认知。

方法

对 17 名澳大利亚痛风患者进行半结构化访谈。访谈重点关注痛风对患者日常生活的影响。访谈进行了录音,逐字转录,并由 2 名独立评审员进行主题分析。

结果

痛风患者报告称,痛风对他们的日常生活有不同但显著的影响。患者主要关注痛风发作时的疼痛和行动不便。参与者还报告了与他们无法参加活动以及需要家人和朋友照顾他们有关的重大社会影响。由于疼痛和行动不便,生产力也受到负面影响,痛风发作时的症状和发作之间的焦虑也降低了情绪健康。饮食、日常计划、爱好、运动、睡眠和服装选择也被报告受到痛风的影响。

结论

在澳大利亚,痛风除了痛风发作的身体症状之外,还会在多个领域产生重大且可预防的影响。通过确定患者的主要关注点,这可能有助于临床医生针对痛风教育进行个性化,并鼓励患者遵医嘱服药,从而改善痛风管理。

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