School of Rehabilitation Therapy, Queen's University, Kingston, Canada.
Department of Political Science, McMaster University, Hamilton, Canada.
Disabil Rehabil. 2022 Apr;44(8):1354-1366. doi: 10.1080/09638288.2020.1804000. Epub 2020 Aug 18.
The purpose of the study was to understand the experiences of families in accessing government support (i.e., disability allowances and rehabilitation services) for their children with disabilities (CWDs) in Bangladesh.
We employed a qualitative descriptive method of study and interviewed 27 family members of CWDs. A thematic analysis was applied to analyze data using the following access dimensions to organize themes: availability, accommodation, accessibility, affordability, acceptability, and awareness.
Participants shared both positive and negative experiences across the access dimensions in accessing government support. Participants appreciated the government's effort in providing support to CWDs. In particular, disability allowances and coordinated rehabilitation services at one-stop were important for families. Further, positive attitudes, such as respect and support from providers, were reported by many families. However, a majority of participants reported a long wait time to get the disability allowance for CWDs. Participants also reported that a shortage of rehabilitation professionals in the public sector was a major concern. Finally, inaccessible infrastructure (e.g., facilities and transportation) and stigma were barriers for many participants of the study.
The results suggest that the government's commitment "on paper" is yet to meet the needs of its intended beneficiaries "in practice". There is a need for policy intervention to address barriers faced by families within the context of current access pathways.Implications for rehabilitationShortage of rehabilitation services and limited availability of disability allowances [negatively] affect family member's access to government-led support for their CWDs in Bangladesh.The government has increased services for people with disability significantly but there is a need for it to ensure the availability of all forms of rehabilitation and increase the quota for disability allowances to meet the needs of families.It is imperative to improve mechanisms of monitoring the commitment of enacting tangible results from policies in order to ensure equitable distribution of disability allowance and rehabilitation services.
本研究旨在了解孟加拉国家庭为其残疾儿童（CWD）获取政府支持（即残疾津贴和康复服务）的经历。
我们采用定性描述性研究方法，采访了 27 名残疾儿童的家庭成员。应用主题分析方法，根据以下获取维度对数据进行分析，以组织主题：可用性、适应性、可及性、负担能力、可接受性和意识。
参与者在获取政府支持方面，在获取维度上分享了积极和消极的体验。参与者赞赏政府为 CWD 提供支持的努力。特别是，残疾津贴和一站式协调的康复服务对家庭很重要。此外，许多家庭报告了提供者的积极态度，例如尊重和支持。然而，大多数参与者报告说，等待残疾津贴的时间很长。参与者还报告说，公共部门康复专业人员短缺是一个主要问题。最后，基础设施（如设施和交通）不可及和污名化是许多研究参与者的障碍。
结果表明，政府的承诺“在纸面上”尚未满足其目标受益人的需求“在实践中”。需要政策干预，以解决家庭在当前获取途径中面临的障碍。
康复服务短缺和残疾津贴可用性有限[负面影响]影响了家庭为其孟加拉国的 CWD 获得政府主导的支持。政府已大幅增加了为残疾人提供的服务，但需要确保提供各种形式的康复服务，并增加残疾津贴的配额，以满足家庭的需求。必须改善监测政策执行承诺的机制，以确保残疾津贴和康复服务的公平分配。
