Department of Neurology, Center for Health + Technology, University of Rochester Medical Center, Rochester, New York, USA.
Radboud University Medical Centre, Nijmegen, the Netherlands.
Mov Disord. 2020 Nov;35(11):1897-1902. doi: 10.1002/mds.28296. Epub 2020 Sep 18.
The COVID-19 pandemic has demonstrated the fragility of clinic-based care for Parkinson's disease and other movement disorders. In response to the virus, many clinics across the world abruptly closed their doors to persons with Parkinson's disease. Fortunately, a niche care model, telemedicine-first described in this journal a generation ago-emerged as the dominant means of providing care. As we adjust to a new normal, we should focus future care not on clinics but on patients. Their needs, guided by clinicians, should determine how care is delivered, whether in the clinic, at home, remotely, or by some combination. Within this patient-centered approach, telemedicine is an attractive care option but not a complete replacement for in-person consultations, which are valuable for specific problems and for those who have access. Now that many clinicians and patients have gained exposure to telemedicine, we can better appreciate its advantages (eg, convenience) and disadvantages (eg, restricted examination). We can also create a new future that utilizes the Internet, video conferencing, smartphones, and sensors. This future will bring many clinicians to one patient, connect individual experts to countless patients, use widely available devices to facilitate diagnosis, and apply novel technologies to measure the disease in new ways. These approaches, which extend to education and research, enable a future where we can care for anyone anywhere and will help us stem the tide of Parkinson's disease. © 2020 International Parkinson and Movement Disorder Society.
新冠疫情大流行凸显了以诊所为基础的帕金森病和其他运动障碍疾病护理的脆弱性。为应对该病毒，世界各地的许多诊所都突然停止为帕金森病患者提供服务。幸运的是，一种利基护理模式——远程医疗，在上一代的这本期刊中就有描述——成为提供护理的主要手段。在我们适应新常态的过程中，我们未来的护理重点不应放在诊所，而应放在患者身上。他们的需求，在临床医生的指导下，应决定护理的提供方式，无论是在诊所、家中、远程还是某种组合。在这种以患者为中心的方法中，远程医疗是一种有吸引力的护理选择，但不能完全替代面对面咨询，后者对于特定问题和有条件的患者来说是有价值的。现在许多临床医生和患者都已经接触到了远程医疗，我们可以更好地了解其优势（例如方便）和劣势（例如检查受限）。我们还可以创造一个新的未来，利用互联网、视频会议、智能手机和传感器。这个未来将把许多临床医生带到一个患者身边，将个别专家与无数患者联系起来，利用广泛可用的设备来促进诊断，并应用新技术以新的方式来测量疾病。这些方法适用于教育和研究，可以实现我们随时随地为任何人提供护理的未来，并帮助我们遏制帕金森病的流行。 © 2020 国际帕金森病和运动障碍协会。
