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一项用于家庭痴呆症护理支持的远程医疗干预的满意度、利用率和可行性的混合方法研究。

Satisfaction, utilization, and feasibility of a telehealth intervention for in-home dementia care support: A mixed methods study.

机构信息

School of Nursing, 21638University of Kansas, Kansas City, KS, USA.

College of Nursing, 4083University of Iowa, Iowa City, IA, USA.

出版信息

Dementia (London). 2021 Jul;20(5):1565-1585. doi: 10.1177/1471301220957905. Epub 2020 Sep 9.


DOI:10.1177/1471301220957905
PMID:32902313
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7940465/
Abstract

BACKGROUND: Technology can enhance support for families caring for persons living with dementia but must be acceptable to be adopted. The FamTechCare clinical trial engaged caregivers in video recording care encounters that were reviewed by an expert panel who provided tailored feedback. The intervention reduced caregiver depression and improved caregiver competence. This mixed methods study reports on caregiver satisfaction and utilization of the intervention and expert panel evaluation of the intervention. METHODS: A convergent parallel mixed methods design was used to evaluate the satisfaction, usability, and feasibility of the FamTechCare intervention. In the multisite randomized controlled trial, caregiver-person living with dementia dyads were randomized to the FamTechCare video support or attention control telephone support groups. Caregivers completed a satisfaction survey at the completion of the 3-month trial. Utilization was evaluated using the number and duration of videos submitted and calls received by caregivers. Relationships between participant characteristics and their satisfaction and utilization were evaluated. Feasibility of the intervention was assessed through content analysis of interviews with the expert panel. RESULTS: The majority of caregivers in both groups reported benefits from participation. More FamTechCare caregivers found the interventionist support to be helpful ( = 0.001) and effective ( = 0.020) compared to attention control caregivers. FamTechCare caregivers of persons with more severe dementia were more likely to report that video recording intruded on their privacy ( = 0.050). Caregiver age, gender, education, dyad relationship, rural status, and type and severity of dementia were not associated with ratings of acceptability, ease of use, or intervention utilization. The expert panel described the FamTechCare intervention as useful and identified adaptations to enhance feasibility. CONCLUSION: Regardless of age, gender, and relationship, caregivers found the intervention acceptable and easy to use and rated the expert feedback as effective in addressing care challenges. Further adaptation may be needed for FamTechCare to be readily implemented.

摘要

背景:技术可以增强对照顾痴呆症患者家庭的支持,但必须被接受才能采用。FamTechCare 临床试验让照顾者记录照顾经历,然后由专家小组进行审查,提供针对性的反馈。该干预措施降低了照顾者的抑郁程度,提高了照顾者的能力。这项混合方法研究报告了照顾者对干预措施的满意度和利用情况,以及专家小组对干预措施的评价。

方法:采用收敛平行混合方法设计评估 FamTechCare 干预措施的满意度、可用性和可行性。在多地点随机对照试验中,将照顾者-与痴呆症患者的二人组随机分配到 FamTechCare 视频支持或关注控制电话支持组。照顾者在 3 个月试验结束时完成满意度调查。利用照顾者提交的视频数量和时长以及收到的电话来评估利用情况。评估了参与者特征与他们的满意度和利用率之间的关系。通过对专家小组的访谈进行内容分析来评估干预措施的可行性。

结果:两组中的大多数照顾者都报告说从参与中受益。与关注控制组相比,更多的 FamTechCare 照顾者认为干预者的支持很有帮助( = 0.001)且有效( = 0.020)。与认知功能障碍较轻的患者相比,认知功能障碍较重的患者的 FamTechCare 照顾者更有可能报告视频录制侵犯了他们的隐私( = 0.050)。照顾者的年龄、性别、教育程度、二人组关系、农村状况以及痴呆症的类型和严重程度与可接受性、易用性或干预措施利用率的评分无关。专家组认为 FamTechCare 干预措施有用,并确定了一些适应性改进以增强可行性。

结论:无论年龄、性别和关系如何,照顾者都认为该干预措施是可接受和易于使用的,并认为专家反馈在解决护理挑战方面是有效的。可能需要进一步的调整,以使 FamTechCare 能够更方便地实施。

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[1]
Satisfaction, utilization, and feasibility of a telehealth intervention for in-home dementia care support: A mixed methods study.

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[2]
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[3]
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[1]
Exploring usability characteristics in computer-based digital health technologies for family caregivers of people with chronic progressive conditions: A scoping review.

Digit Health. 2025-8-11

[2]
Development of a Specialized Telemedicine Protocol for Cognitive Disorders: The TeleCogNition Project in Greece.

Geriatrics (Basel). 2025-7-16

[3]
Implementation of Telemedicine for Patients With Dementia and Their Caregivers: Scoping Review.

J Med Internet Res. 2025-5-5

[4]
Exploring the Role of Sex and Gender in the Adoption of Assistive Technology in Dementia Care: A Scoping Review.

J Appl Gerontol. 2025-9

[5]
Perceptions of Patients, Caregivers, and Healthcare Professionals toward Telemedicine Use for Cognitive and Movement Disorders in the Aegean Islands, Greece: A Pilot Study of the SI4CARE European Project.

Geriatrics (Basel). 2023-12-26

[6]
Implementation and dissemination of home- and community-based interventions for informal caregivers of people living with dementia: a systematic scoping review.

Implement Sci. 2023-11-8

[7]
Exploring the impact of patient, physician and technology factors on patient video consultation satisfaction.

Digit Health. 2023-9-28

[8]
How Telemedicine Can Improve the Quality of Care for Patients with Alzheimer's Disease and Related Dementias? A Narrative Review.

Medicina (Kaunas). 2022-11-22

[9]
Digital interventions for people with dementia and carers: effective, cost-effective and equitable?

Neurodegener Dis Manag. 2022-10

[10]
Behavioral Change Factors and Retention in Web-Based Interventions for Informal Caregivers of People Living With Dementia: Scoping Review.

J Med Internet Res. 2022-7-7

本文引用的文献

[1]
Cost-effectiveness of a telehealth intervention for in-home dementia care support: Findings from the FamTechCare clinical trial.

Res Nurs Health. 2021-2

[2]
Supporting Family Caregivers With Technology for Dementia Home Care: A Randomized Controlled Trial.

Innov Aging. 2019-10-16

[3]
Influence of Positive and Negative Dimensions of Dementia Caregiving on Caregiver Well-Being and Satisfaction With Life: Findings From the IDEAL Study.

Am J Geriatr Psychiatry. 2019-2-11

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Am J Geriatr Psychiatry. 2018-12-6

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Nonpharmacological Management of Behavioral and Psychological Symptoms of Dementia: What Works, in What Circumstances, and Why?

Innov Aging. 2018-3-20

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J Med Internet Res. 2018-6-12

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A randomized trial using telehealth technology to link caregivers with dementia care experts for in-home caregiving support: FamTechCare protocol.

Res Nurs Health. 2018-6

[8]
Online Training and Support Programs Designed to Improve Mental Health and Reduce Burden Among Caregivers of People With Dementia: A Systematic Review.

J Am Med Dir Assoc. 2018-1-4

[9]
Computer and telephone delivered interventions to support caregivers of people with dementia: a systematic review of research output and quality.

BMC Geriatr. 2017-11-16

[10]
The influence of caregivers and behavioral and psychological symptoms on nursing home placement of persons with Alzheimer's disease: A matched case-control study.

SAGE Open Med. 2016-8-23

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