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针对痴呆症患者及其照护者的远程医疗实施:范围综述

Implementation of Telemedicine for Patients With Dementia and Their Caregivers: Scoping Review.

作者信息

Ye Mengfei, Liu Zheng, Xie Weigen, Shou Mengna, Wang Shengpang, Lin Xuebing, Xu Yan, Yao Miner, Chen Jialu, Shou Yunli, Wu Jingzhu, Guan Lili

机构信息

Department of Psychiatry, Shaoxing Seventh People's Hospital, Affiliated Mental Health Center of Shaoxing University, Shaoxing, China.

Department of Pharmacology, School of Medicine, Shaoxing University, Shaoxing, China.

出版信息

J Med Internet Res. 2025 May 5;27:e65667. doi: 10.2196/65667.

DOI:10.2196/65667
PMID:40324768
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12089872/
Abstract

BACKGROUND

As dementia advances, symptoms and associated concerns lead to significant distress for both the patients and their caregivers. Telemedicine has the capacity to alleviate care-related issues for patients with dementia and their family caregivers.

OBJECTIVE

This study aims to synthesize the implementation strategies for providing telemedicine to assist patients with dementia and their caregivers in home and community settings and to examine its effectiveness and implementation barriers.

METHODS

In accordance with the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) guidelines, a systematic search was conducted across 6 databases, including MEDLINE, Embase, PsycINFO, CINAHL, Web of Science, and ProQuest. The eligibility criteria for peer-reviewed English publications from January 2000 up to January 2025 encompassed research studies related to telemedicine services for individuals diagnosed with dementia and caregivers.

RESULTS

This study included 54 articles, comprising 14,446 participants from 10 countries. In total, 4 major themes emerged from the articles: the design of telemedicine services, effectiveness of telemedicine, external environmental factors, and barriers in telemedicine implementation. Cognitive training was addressed in 28 studies. Within the domain of work and leisure, 24 solutions were identified. Most reviewed studies indicated favorable experiences with telemedicine services and highlighted perceived personal and social benefits among patients with dementia, as well as identified barriers to accessing and using such services.

CONCLUSIONS

Future studies should encompass the enhancement of digital accessibility for individuals with restricted resources and limited technological proficiency, the use of randomized controlled trial methodologies to ascertain the comparative efficacy of various service delivery modes, and the augmentation of sample diversity.

摘要

背景

随着痴呆症病情进展,症状及相关问题给患者及其照护者都带来了极大痛苦。远程医疗有能力缓解痴呆症患者及其家庭照护者与照护相关的问题。

目的

本研究旨在综合阐述在家庭和社区环境中为痴呆症患者及其照护者提供远程医疗的实施策略,并考察其有效性及实施障碍。

方法

按照PRISMA-ScR(系统评价与Meta分析扩展版的范围综述优先报告项目)指南,对6个数据库进行了系统检索,包括MEDLINE、Embase、PsycINFO、CINAHL、科学引文索引和ProQuest。纳入标准为2000年1月至2025年1月期间经同行评审的英文出版物,涵盖与为被诊断患有痴呆症的个体及其照护者提供远程医疗服务相关的研究。

结果

本研究纳入了54篇文章,涉及来自10个国家的14446名参与者。文章共出现4个主要主题:远程医疗服务的设计、远程医疗的有效性、外部环境因素以及远程医疗实施中的障碍。28项研究涉及认知训练。在工作和休闲领域,确定了24种解决方案。大多数综述研究表明远程医疗服务体验良好,并强调了痴呆症患者所感知到的个人和社会效益,同时也指出了获取和使用此类服务的障碍。

结论

未来的研究应包括提高资源有限和技术水平有限者的数字可及性,采用随机对照试验方法确定各种服务提供模式的比较疗效,以及增加样本多样性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/a4bd7d4ad805/jmir_v27i1e65667_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/1943f680c717/jmir_v27i1e65667_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/92063d2e4da5/jmir_v27i1e65667_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/a4bd7d4ad805/jmir_v27i1e65667_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/1943f680c717/jmir_v27i1e65667_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/92063d2e4da5/jmir_v27i1e65667_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd07/12089872/a4bd7d4ad805/jmir_v27i1e65667_fig3.jpg

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本文引用的文献

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The impact of a lifestyle behaviour change program on healthcare costs: Quasi-experimental real-world evidence from an open-access mobile health app in the Netherlands.生活方式行为改变计划对医疗保健成本的影响:来自荷兰一款开放获取移动健康应用程序的准实验性现实世界证据。
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Telemedicine for hearing-impaired patients in Italy.意大利针对听力受损患者的远程医疗。
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Patient and health professional attitudes towards the use of telemedicine for abortion care in Britain: Findings from the SACHA study.
英国患者和医疗专业人员对使用远程医疗进行堕胎护理的态度:SACHA研究的结果。
Digit Health. 2024 Nov 3;10:20552076241288717. doi: 10.1177/20552076241288717. eCollection 2024 Jan-Dec.
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Efficacy of the residential care transition module: A telehealth intervention for dementia family caregivers of relatives living in residential long-term care settings.住宅护理过渡模块的疗效:一种针对居住在长期护理住宅环境中的亲属的痴呆症家庭护理者的远程医疗干预措施。
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Real-world experience with Deutetrabenazine management in patients with Huntington's disease using video-based telemedicine.使用基于视频的远程医疗管理亨廷顿病患者的二氢麦角碱的真实世界经验。
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FindMyApps compared with usual tablet use to promote social health of community-dwelling people with mild dementia and their informal caregivers: a randomised controlled trial.将FindMyApps与常规平板电脑使用进行比较,以促进轻度痴呆社区居民及其非正式照护者的社交健康:一项随机对照试验。
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