Global Smile Foundation, Norwood, MA, USA.
Department of Surgery, 21688University of Maryland Medical System, Baltimore, USA.
Cleft Palate Craniofac J. 2021 May;58(5):647-652. doi: 10.1177/1055665620957531. Epub 2020 Sep 11.
Clefts of the lip and palate are leading congenital facial anomalies. Underserved patients with these facial differences lack access to medical care, surgical expertise, prenatal care, or psychological support. Moreover, the disease results in significant economic strains on patients and their families. While surgical outreach programs have attempted to fill this void, significant challenges facing international comprehensive cleft care persist.
Propose a path toward international sustainable cleft care based on the Global Smile Foundation experience.
International sustainable comprehensive cleft care can be achieved by regulating surgical outreach programs. Regulation of these missions would ensure standardized care and encourage stakeholders to cooperate and adequately allocate funding and resources. Capacity building can be achieved through "diagonal" cleft care delivery models, multidisciplinary workshops, fellowship programs, research and quality assurance, as well as leveraging emerging technologies such as Augmented Reality.
International comprehensive cleft care requires continuous collaborative efforts between visiting and local teams as well as international and national organizations. Standardizing and regulating current practices as well as promoting capacity building initiatives can contribute to sustainable cleft care.
唇腭裂是常见的先天性面部畸形。这些面部差异的患者服务不足，无法获得医疗保健、手术专业知识、产前护理或心理支持。此外，该疾病给患者及其家庭带来了巨大的经济压力。虽然外科外展项目试图填补这一空白，但国际全面腭裂护理仍面临重大挑战。
根据全球微笑基金会的经验，提出实现国际可持续腭裂护理的途径。
通过规范外科外展项目，可以实现国际可持续全面腭裂护理。这些任务的规范将确保标准化的护理，并鼓励利益相关者合作并充分分配资金和资源。通过“对角线”腭裂护理交付模式、多学科研讨会、奖学金计划、研究和质量保证，以及利用增强现实等新兴技术，可以实现能力建设。
国际全面腭裂护理需要来访团队和当地团队以及国际和国家组织之间的持续合作努力。标准化和规范现有做法以及促进能力建设举措有助于可持续腭裂护理。
