Austin Rosalynn C, Schoonhoven Lisette, Richardson Alison, Kalra Paul R, May Carl R
School of Health Sciences, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.
Department of Cardiology, Portsmouth Hospitals University NHS Trust, Hampshire, UK.
ESC Heart Fail. 2020 Dec;7(6):4472-4477. doi: 10.1002/ehf2.13010. Epub 2020 Sep 17.
Patients with chronic heart failure (CHF) struggle to follow self-care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self-care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives.
We used a sequential exploratory mixed-methods design to investigate the interaction between symptoms and BoT in CHF patients.
If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self-care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.
慢性心力衰竭(CHF)患者难以遵循自我护理计划,这可能导致病情恶化和生活质量下降。治疗负担(BoT)描述了这种工作量及其对患者生活的影响。表明患者治疗工作量与其管理能力之间的平衡至关重要。如果降低治疗负担,自我护理参与度和生活质量可能会提高。本文描述了用于探索症状和管理任务如何影响CHF患者生活的SYMPACT研究设计和方法。
我们采用了序贯探索性混合方法设计来研究CHF患者症状与治疗负担之间的相互作用。
如果症状与治疗负担存在内在联系,那么CHF患者所经历的高水平症状可能导致治疗负担增加,这可能会降低患者对自我护理计划的参与度。SYMPACT研究可能会识别出可改变的因素,以改善CHF患者的体验。