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“保密原则”:在 HPTN071(POPART)试验社区中管理合并症和公私二分法。

"It Stays Between Us": Managing Comorbidities and Public/Private Dichotomies in HPTN071 (POPART) Trial Communities.

机构信息

Desmond Tutu TB Centre, Department of Paediatrics and Child Health, Stellenbosch University.

Department of Sociology and Social Anthropology, Stellenbosch University.

出版信息

Med Anthropol. 2021 Apr;40(3):280-293. doi: 10.1080/01459740.2020.1820501. Epub 2020 Oct 1.

Abstract

In contexts of scarcity, managing comorbidities is a complex process, shaped by divergent understandings of causes, prognoses, and social meanings of illness. Drawing on research with one young South African woman living with HIV and epilepsy, and 13 other people with comorbidities, we describe how concepts of "public" and "private" shape the management of co-morbid conditions. Despite narratives of HIV "normalization," participants labored to keep their HIV status private, while sharing other illness experiences more publicly. We challenge simple dichotomies between public and private spheres and emphasize the need for more fluid understandings of how people negotiate social space.

摘要

在资源匮乏的情况下,管理合并症是一个复杂的过程,受到对病因、预后和疾病社会意义的不同理解的影响。本文通过对一位南非年轻的艾滋病毒和癫痫共病患者以及其他 13 位共病患者的研究,描述了“公共”和“私人”概念如何影响共病的管理。尽管艾滋病毒“正常化”的说法存在,但参与者努力将其艾滋病毒状况保密,而更公开地分享其他疾病经历。我们对公私领域之间的简单二分法提出质疑,并强调需要更灵活地理解人们如何在社会空间中进行协商。

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