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恶意的白人、贪婪的女性和有道德的志愿者:通过南非临床试验叙述来协商社会关系。

Malicious whites, greedy women, and virtuous volunteers: negotiating social relations through clinical trial narratives in South Africa.

机构信息

Department of Anthropology University of Hawai'i, Mānoa, HI, USA.

出版信息

Med Anthropol Q. 2013 Mar;27(1):103-20. doi: 10.1111/maq.12018.

DOI:10.1111/maq.12018
PMID:23674325
Abstract

As clinical trial research increasingly permeates sub-Saharan Africa, tales of purposeful HIV infection, blood theft, and other harmful outcomes are widely reported by participants and community members. Examining responses to the Microbicide Development Programme 301-a randomized, double-blind, placebo-controlled microbicide trial-we investigate the ways in which these accounts embed medical research within postcolonial contexts. We explore three popular narratives circulating around the Johannesburg trial site: malicious whites killing participants and selling their blood, greedy women enrolling in the trial solely for financial gain, and virtuous volunteers attempting to ensure their health and aid others through trial participation. We argue that trial participants and community members transform medical research into a meaningful tool that alternately affirms, debates, and challenges contemporary social relations.

摘要

随着临床试验研究在撒哈拉以南非洲日益普及,参与者和社区成员广泛报道了有目的的 HIV 感染、血液盗窃和其他有害后果的故事。本文通过考察对 301 项微观繁殖体开发计划的反应——一项随机、双盲、安慰剂对照的微观繁殖体试验——来研究这些说法如何将医学研究嵌入后殖民背景中。我们探讨了在约翰内斯堡试验现场流传的三个流行说法:恶意白人杀害参与者并出售他们的血液、贪婪的妇女仅为了经济利益而参加试验,以及善良的志愿者试图通过参与试验来确保自己的健康并帮助他人。我们认为,试验参与者和社区成员将医学研究转化为一种有意义的工具,它交替地肯定、辩论和挑战当代社会关系。

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