Child and Adolescent Psychiatry, Region Zealand, Roskilde, Denmark.
Psychiatric Research Unit, Region Zealand, Slagelse, Denmark.
Fam Process. 2021 Sep;60(3):772-787. doi: 10.1111/famp.12593. Epub 2020 Oct 3.
Despite the fact that family involvement is encouraged in early interventions for borderline personality disorder (BPD), there is a limited knowledge on the experience of caring for adolescents with BPD. This is an exploratory retrospective study nested within a randomized controlled trial that compared mentalization-based treatment (MBT) in groups to treatment as usual for adolescents with BPD. Caregivers received six MBT-Parents sessions or standard care over one year. Three months after end of treatment (EOT), 75 caregivers (35 in MBT, 40 in TAU) filled out the Burden Assessment Scale, and 71 (34 in MBT, 37 in TAU) the Family Satisfaction Survey. The adolescents filled out the Borderline Personality Features Scale for Children at baseline and after twelve months at EOT. We tested whether caregiver demographics, adolescents' severity of BPD, treatment and adolescents' dropout from treatment predicted levels of caregiver burden and satisfaction with treatment. The caregivers reported high levels of burden on the BAS (M = 40.3, SD = 12.2). Our study suggests that higher BPD severity at EOT among the adolescents predicted caregiver burden (p = .03), whereas higher baseline BPD severity predicted satisfaction with treatment (p = .04) and that biological mothers could be more burdened than other types of caregivers but also might be more satisfied with treatment. Treatment and adolescents' dropout from treatment were not related to caregiver burden or satisfaction with treatment. To help inform future research and to devise appropriate interventions for caregivers and adolescents with BPD, it is important to identify possible predictors of caregiver burden. The results of this initial exploratory study indicate that caregivers (and particularly biological mothers) of adolescents with more severe levels of BPD could be particularly vulnerable toward feelings of burden and therefore are in need of support.
尽管边缘型人格障碍(BPD)的早期干预鼓励家庭成员参与,但对于照顾患有 BPD 的青少年的经验,我们的了解有限。这是一项嵌套在随机对照试验中的探索性回顾性研究,该试验比较了团体心理化治疗(MBT)与 BPD 青少年的常规治疗。护理人员在一年内接受六次 MBT-Parents 课程或标准护理。在治疗结束后三个月(EOT),75 名护理人员(MBT 组 35 名,TAU 组 40 名)填写了负担评估量表,71 名护理人员(MBT 组 34 名,TAU 组 37 名)填写了家庭满意度调查。青少年在基线和 EOT 后 12 个月填写了儿童边缘人格特征量表。我们测试了护理人员的人口统计学特征、青少年 BPD 的严重程度、治疗以及青少年是否从治疗中辍学,这些因素是否可以预测护理人员的负担和对治疗的满意度。护理人员在 BAS 上报告了较高的负担水平(M=40.3,SD=12.2)。我们的研究表明,青少年在 EOT 时的 BPD 严重程度较高(p=.03)预测了护理人员的负担,而基线时的 BPD 严重程度较高(p=.04)预测了对治疗的满意度,生物母亲可能比其他类型的护理人员负担更重,但也可能对治疗更满意。治疗和青少年从治疗中辍学与护理人员的负担或对治疗的满意度无关。为了帮助为未来的研究提供信息并为患有 BPD 的护理人员和青少年制定适当的干预措施,确定护理人员负担的可能预测因素很重要。这项初步探索性研究的结果表明,患有 BPD 程度较严重的青少年的护理人员(尤其是生物母亲)可能特别容易感到负担过重,因此需要得到支持。