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Integration of Registries with EHRs to Accelerate Generation of Real-World Evidence for Clinical Practice and Learning Health Systems Research: Recommendations from a Workshop on Registry Best Practices.将注册登记系统与电子健康记录整合，以加速生成用于临床实践和学习型健康系统研究的真实世界证据：注册登记最佳实践研讨会的建议
J Bone Joint Surg Am. 2020 Oct 7;102(19):e110. doi: 10.2106/JBJS.19.01464.
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Kaiser Permanente National Total Joint Replacement Registry: aligning operations with information technology.凯萨永久全国关节置换总登记处：使运营与信息技术保持一致。
Clin Orthop Relat Res. 2010 Oct;468(10):2646-63. doi: 10.1007/s11999-010-1463-9.
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Bridging Unmet Medical Device Ecosystem Needs With Strategically Coordinated Registries Networks.通过战略协调的注册网络满足未满足的医疗设备生态系统需求。
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Good practices for real-world data studies of treatment and/or comparative effectiveness: Recommendations from the joint ISPOR-ISPE Special Task Force on real-world evidence in health care decision making.治疗和/或比较效果的真实世界数据研究的良好实践：ISPOR-ISPE联合特别工作组关于医疗保健决策中真实世界证据的建议。
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Bridging the gap between the randomised clinical trial world and the real world by combination of population-based registry and electronic health record data: A case study in haemato-oncology.通过基于人群的登记系统与电子健康记录数据相结合缩小随机临床试验与现实世界之间的差距：血液肿瘤学案例研究
Eur J Cancer. 2017 Nov;86:178-185. doi: 10.1016/j.ejca.2017.09.007. Epub 2017 Oct 6.
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Frontiers: Integration of a Research Participant Registry with Medical Clinic Registration and Electronic Health Records.前沿：研究参与者登记系统与医疗诊所登记及电子健康记录的整合。
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Stud Health Technol Inform. 2016;228:624-8.

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ICF based comparison of musculoskeletal health in regions of Poland and Spain.基于 ICF 的波兰和西班牙地区肌肉骨骼健康比较。
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Patients' perspectives on the benefits of feedback on patient-reported outcome measures in a web-based personalized decision report for hip and knee osteoarthritis.患者对基于网络的个性化决策报告中患者报告结局测量反馈益处的看法：用于髋和膝关节骨关节炎。
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Creating a provincial post COVID-19 interdisciplinary clinical care network as a learning health system during the pandemic: Integrating clinical care and research.在疫情期间创建一个省级新冠后跨学科临床护理网络作为学习型健康系统：整合临床护理与研究。
Learn Health Syst. 2022 May 15;7(1):e10316. doi: 10.1002/lrh2.10316.

本文引用的文献

1
The Effect of Prosthetic Design and Polyethylene Type on the Risk of Revision for Infection in Total Knee Replacement: An Analysis of 336,997 Prostheses from the Australian Orthopaedic Association National Joint Replacement Registry.假体设计和聚乙烯类型对全膝关节置换术后感染翻修风险的影响：来自澳大利亚矫形协会全国关节置换登记处的 336997 例假体分析。
J Bone Joint Surg Am. 2018 Dec 5;100(23):2033-2040. doi: 10.2106/JBJS.17.01639.
2
Risk of further surgery on the same or opposite side and mortality after primary total hip arthroplasty: A multi-state analysis of 133,654 patients from the Swedish Hip Arthroplasty Register.初次全髋关节置换术后同侧或对侧再次手术的风险和死亡率：来自瑞典髋关节置换登记处的 133654 例患者的多状态分析。
Acta Orthop. 2018 Aug;89(4):386-393. doi: 10.1080/17453674.2018.1475179. Epub 2018 May 23.
3
The role of national registries in improving patient safety for hip and knee replacements.国家登记系统在提高髋关节和膝关节置换手术患者安全性方面的作用。
BMC Musculoskelet Disord. 2017 Oct 16;18(1):414. doi: 10.1186/s12891-017-1773-0.
4
Transforming Evidence Generation to Support Health and Health Care Decisions.转化证据生成以支持健康及医疗保健决策。
N Engl J Med. 2016 Dec 15;375(24):2395-2400. doi: 10.1056/NEJMsb1610128.
5
Patient focused registries can improve health, care, and science.以患者为中心的注册系统可以改善健康、医疗和科学。
BMJ. 2016 Jul 1;354:i3319. doi: 10.1136/bmj.i3319.
6
Patient-reported outcome measures in arthroplasty registries.关节置换登记中的患者报告结局指标。
Acta Orthop. 2016 Jul;87 Suppl 1(Suppl 1):3-8. doi: 10.1080/17453674.2016.1181815. Epub 2016 May 11.
7
ACC/AHA/STS Statement on the Future of Registries and the Performance Measurement Enterprise: A Report of the American College of Cardiology/American Heart Association Task Force on Performance Measures and The Society of Thoracic Surgeons.美国心脏病学会/美国心脏协会/胸外科医师协会关于注册登记与绩效评估事业未来的声明：美国心脏病学会/美国心脏协会绩效评估特别工作组及胸外科医师协会报告
J Am Coll Cardiol. 2015 Nov 17;66(20):2230-2245. doi: 10.1016/j.jacc.2015.07.010. Epub 2015 Oct 2.
8
Caveats for the use of operational electronic health record data in comparative effectiveness research.使用操作性电子健康记录数据进行比较有效性研究的注意事项。
Med Care. 2013 Aug;51(8 Suppl 3):S30-7. doi: 10.1097/MLR.0b013e31829b1dbd.
9
Beyond joint implant registries: a patient-centered research consortium for comparative effectiveness in total joint replacement.超越关节置换登记系统：一个以患者为中心的全关节置换比较疗效研究联盟。
JAMA. 2012 Sep 26;308(12):1217-8. doi: 10.1001/jama.2012.12568.

Integration of Registries with EHRs to Accelerate Generation of Real-World Evidence for Clinical Practice and Learning Health Systems Research: Recommendations from a Workshop on Registry Best Practices.

作者信息

Franklin Patricia D, Lurie Jon, Tosteson Tor D, Tosteson Anna N A

机构信息

Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois.

Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire.

出版信息

J Bone Joint Surg Am. 2020 Oct 7;102(19):e110. doi: 10.2106/JBJS.19.01464.

DOI:10.2106/JBJS.19.01464
PMID:33027129
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9961678/
Abstract
摘要