Eddy Brandon S, Garrett Sean C, Rajen Sneha, Peters Betts, Wiedrick Jack, O'Connor Abigail, Renda Ashley, Huggins Jane E, Fried-Oken Melanie
REKNEW Lab, Institute on Development and Disability, Pediatrics, Oregon Health and Science University, Portland, OR. USA.
University of Michigan, Ann Arbor, MI. USA.
Brain Comput Interfaces (Abingdon). 2019;6(1-2):13-24. doi: 10.1080/2326263x.2019.1643203. Epub 2019 Aug 1.
Much brain-computer interface (BCI) research is intended to benefit people with disabilities (PWD), but inclusion of these individuals as study participants remains relatively rare. When participants with disabilities are included, they are described with a range of clinical and non-clinical terms with varying degrees of specificity, often leading to difficulty in interpreting or replicating results. This study examined trends in inclusion and description of study participants with disabilities across six International BCI Meetings from 1999 to 2016. Abstracts from each Meeting were analyzed by two trained independent reviewers. Results suggested a decline in participation by PWD across Meetings until the 2016 Meeting. Increased diagnostic specificity was noted at the 2013 and 2016 Meetings. Fifty-eight percent of the abstracts identified PWD as being the target beneficiaries of BCI research, though only twenty-two percent included participants with disabilities, suggesting evidence of a persistent translational gap. Participants with disabilities were most commonly described as having physical and/or communication impairments compared to impairments in other areas. Implementing participatory action research principles and user-centered design strategies continues to be necessary within BCI research to bridge the translational gap and facilitate use of BCI systems within functional environments for PWD.
许多脑机接口（BCI）研究旨在造福残疾人（PWD），但将这些人纳入研究参与者的情况仍然相对较少。当纳入残疾参与者时，他们会用一系列临床和非临床术语来描述，具体程度各不相同，这往往导致难以解释或重复研究结果。本研究调查了1999年至2016年期间六次国际脑机接口会议中残疾研究参与者的纳入情况和描述趋势。每次会议的摘要由两名经过培训的独立评审员进行分析。结果表明，直到2016年会议，残疾人参与度在各次会议中呈下降趋势。在2013年和2016年会议上，诊断特异性有所提高。58%的摘要将残疾人确定为脑机接口研究的目标受益者，尽管只有22%纳入了残疾参与者，这表明存在持续的转化差距。与其他领域的损伤相比，残疾参与者最常被描述为有身体和/或沟通障碍。在脑机接口研究中，继续有必要实施参与式行动研究原则和以用户为中心的设计策略，以弥合转化差距，并促进脑机接口系统在残疾人功能环境中的使用。
