Faculty of Wellbeing, Education and Language Studies, The Open University, 10 Drumsheugh Gardens, EH3 7QJ, Edinburgh, Scotland.
Macmillan Cancer Support, Caledonian Exchange, 19A Canning Street, Edinburgh, EH3 8EG, Scotland.
J Cancer Educ. 2022 Jun;37(3):608-614. doi: 10.1007/s13187-020-01854-7.
Caring for children and young people with cancer requires specific knowledge, skills and experience to deliver the complex care regimes both within the hospital or community environment. This study explored the educational gaps in caring for children and young people with cancer. To address this, a mixed methodology approach was adopted in two phases. Phase one was a questionnaire circulated to healthcare professional members (n = 850) of the Children's Cancer and Leukaemia Group and Managed Service Network, Scotland. Response rate (n = 121) (14%) was achieved. In phase two of the study, a focus groups (n = 4) was conducted with young people in Scotland through the Managed Service Network. This was to gain a critical understanding from service user perspective and what they deemed as important to their overall care delivery. Phase one: healthcare professional results reported that 76% (n = 93) were aware of education; 69% (n = 84) found that knowledge supported practice development, but only 45% (n = 55) finding current education provision useful. The top education topics identified to be lacking in educational availability were communication, psychological support, dealing with young people, supportive care, diagnosis and treatment and challenges to learning. Several participants 64% (n = 78) suggested that funding and time was a barrier, and that there was a lack of provision. Phase two: Findings from the focus group (n = 4) thematic analysis identified five key themes. Service users expected professionals to be knowledgeable and trained, but when talking about experiencing care, gave insights into the gaps in their care. Findings suggest that formal cancer education is required.
照顾患有癌症的儿童和青少年需要特定的知识、技能和经验，以便在医院或社区环境中提供复杂的护理方案。本研究探讨了照顾癌症儿童和青少年方面的教育差距。为了解决这个问题，采用了混合方法学方法，分两个阶段进行。第一阶段是向儿童癌症和白血病组和管理服务网络的医疗保健专业人员成员（n=850）分发问卷。研究达到了 14%的回应率（n=121）。在研究的第二阶段，通过管理服务网络在苏格兰对年轻人进行了 4 个焦点小组（n=4）。这是为了从服务使用者的角度获得批判性的理解，以及他们认为对他们整体护理提供重要的方面。第一阶段：医疗保健专业人员的结果报告称，76%（n=93）了解教育；69%（n=84）发现知识支持实践发展，但只有 45%（n=55）发现当前的教育提供有用。确定在教育可用性方面缺乏的顶级教育主题是沟通、心理支持、与年轻人打交道、支持性护理、诊断和治疗以及学习挑战。几名参与者（n=78）的 64%建议资金和时间是一个障碍，并且缺乏提供。第二阶段：来自焦点小组（n=4）的主题分析的结果确定了五个关键主题。服务使用者期望专业人员知识渊博且经过培训，但在谈到护理体验时，他们深入了解了护理方面的差距。研究结果表明，需要提供正式的癌症教育。
