Dieckelmann Mirjam, Petersen Juliana J, Güthlin Corina, Reinhardt Felix, Plath Jasper, Jeitler Klaus, Semlitsch Thomas, Gerlach Ferdinand M, Siebenhofer Andrea
Institute of General Practice, Goethe University Frankfurt, Frankfurt am Main, Germany.
Institute of General Practice and Evidence-based Health Services Research, Medical University of Graz, Graz, Austria.
BMJ Open. 2020 Oct 10;10(10):e037158. doi: 10.1136/bmjopen-2020-037158.
To review systematically the past 10 years of research activity into the healthcare experiences (HCX) of patients with chronic heart failure (CHF) in Germany, in order to identify research foci and gaps and make recommendations for future research.
In this scoping review, six databases and grey literature sources were systematically searched for articles reporting HCX of patients with CHF in Germany that were published between 2008 and 2018. Extracted results were summarised using quantitative and qualitative descriptive analysis.
Of the 18 studies (100%) that met the inclusion criteria, most were observational studies (60%) that evaluated findings quantitatively (60%). HCX were often concerned with patient information, global satisfaction as well as relationships and communication between patients and providers and generally covered ambulatory care, hospital care and rehabilitation services. Overall, the considerable heterogeneity of the included studies' outcomes only permitted relatively trivial levels of synthesis.
In Germany, research on HCX of patients with CHF is characterised by missing, inadequate and insufficient information. Future research would benefit from qualitative analyses, evidence syntheses, longitudinal analyses that investigate HCX throughout the disease trajectory, and better reporting of sociodemographic data. Furthermore, research should include studies that are based on digital data, reports of experiences gained in under-investigated yet patient-relevant healthcare settings and include more female subjects.
系统回顾过去10年德国慢性心力衰竭（CHF）患者医疗保健体验（HCX）的研究活动，以确定研究重点和差距，并为未来研究提出建议。
在这项范围综述中，系统检索了六个数据库和灰色文献来源，以查找2008年至2018年发表的有关德国CHF患者HCX的文章。使用定量和定性描述性分析对提取的结果进行总结。
在符合纳入标准的18项研究（100%）中，大多数是观察性研究（60%），且对结果进行了定量评估（60%）。HCX通常涉及患者信息、总体满意度以及患者与提供者之间的关系和沟通，一般涵盖门诊护理、医院护理和康复服务。总体而言，纳入研究结果的显著异质性仅允许进行相对有限的综合分析。
在德国，关于CHF患者HCX的研究存在信息缺失、不充分和不足的问题。未来的研究将受益于定性分析、证据综合、贯穿疾病轨迹调查HCX的纵向分析，以及更好地报告社会人口数据。此外，研究应包括基于数字数据的研究、在研究不足但与患者相关的医疗保健环境中获得的经验报告，并纳入更多女性受试者。
