Prod'homme Chloé
CHU de Lille, clinique de médecine palliative, université de Lille, CNRS, 2, avenue Oscar-Lambret, 59000 Lille, France; Université Catholique de Lille, centre d'éthique médical, faculté de médecine et de maïeutique de Lille, ETHICS (Experiment, Transhumanism, Human Interactions, Care and Society) - EA 7446, 46, rue du Port, 59000 Lille, France.
Bull Cancer. 2020 Nov;107(11):1118-1128. doi: 10.1016/j.bulcan.2020.08.015. Epub 2020 Oct 12.
Patients with hematological malignancies have less access to palliative care than other cancer patients, and benefit from it later in the course of their disease, though symptom burden is just as heavy.
We created a specialized outpatient palliative care consultation in the hematology department to improve the quality of patient management and enhance cooperation with hematologists.
We found that though patient characteristics and survival were extremely variable, they all had in common a need for symptom management and care coordination. As a result of the consultation, hematology teams called upon a specialized palliative care multidisciplinary team more often to meet patients hospitalized within their departments, and more patients with hematological malignancies hemopathies were hospitalized in palliative care units.
We describe the benefits that can be anticipated when collaboration increases between hematology and palliative care, including early on in the course of disease. It is now up to policy-makers to establish priorities regarding the allocation of health resources, in particular regarding end-of-life. This requires identifying patient needs, optimizing patient access to specialized palliative care, and improving the pertinence of palliative care interventions as they cannot be generalized.
血液系统恶性肿瘤患者比其他癌症患者获得姑息治疗的机会更少,且在疾病进程后期才从中受益,尽管他们的症状负担同样沉重。
我们在血液科设立了专门的门诊姑息治疗咨询服务,以提高患者管理质量并加强与血液科医生的合作。
我们发现,尽管患者特征和生存期差异极大,但他们都有症状管理和护理协调的需求。咨询服务开展后,血液科团队更频繁地召集专门的姑息治疗多学科团队,以诊治在其科室住院的患者,更多血液系统恶性肿瘤患者被收治到姑息治疗病房。
我们阐述了血液科与姑息治疗之间加强合作(包括在疾病早期)可预期带来的益处。现在,政策制定者应确定卫生资源分配的优先事项,特别是在临终关怀方面。这需要明确患者需求,优化患者获得专门姑息治疗的途径,并提高姑息治疗干预措施的针对性,因为这些措施不能一概而论。