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父母在孩子去世后在儿童收容所使用“冷”设施的体验:一项定性研究。

Parents experience of using "cold" facilities at a children's hospice after the death of their baby: A qualitative study.

机构信息

Department of Clinical Psychology, University of East Anglia, Norwich, United Kingdom.

出版信息

Death Stud. 2022;46(6):1501-1507. doi: 10.1080/07481187.2020.1836070. Epub 2020 Oct 21.

DOI:10.1080/07481187.2020.1836070
PMID:33085586
Abstract

There is a growing movement in children's hospice care to offer families time with their baby after death through use of a "cold cot"; however, there is very limited research in this area. We interviewed seven parents (four mothers and three fathers). Our thematic analysis identified six themes: being able to care for my baby in a way that I never had, space and time to adjust to the loss, time as a family, having my baby close, creating memories, and awareness of societal perceptions. The authors conclude that these facilities provided memories, strengthened legacy, and were a valuable experience.

摘要

在儿童临终关怀领域,有一种日益流行的做法,即通过使用“冷停尸位”让家属在婴儿死后与其共度时光;然而,这方面的研究非常有限。我们采访了 7 位家长(4 位母亲和 3 位父亲)。我们的主题分析确定了六个主题:能够以我从未有过的方式照顾我的孩子、有空间和时间来适应失去孩子的痛苦、作为一个家庭的时间、让我的孩子靠近、创造回忆、以及意识到社会观念。作者得出结论,这些设施提供了回忆、强化了遗产,并是一次宝贵的体验。

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Metaphors that shape parents' perceptions of effective communication with healthcare practitioners following child death: a qualitative UK study.父母对子女死亡后与医疗保健从业者有效沟通的看法所形成的隐喻:一项英国定性研究。
BMJ Open. 2022 Jan 25;12(1):e054991. doi: 10.1136/bmjopen-2021-054991.
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'It was like an airbag, it cushioned the blow': A multi-site qualitative study of bereaved parents' experiences of using cooling facilities.
“就像安全气囊一样,它减轻了冲击”:一项多地点定性研究,探讨了丧亲父母使用冷却设施的体验。
Palliat Med. 2022 Feb;36(2):365-374. doi: 10.1177/02692163211059345. Epub 2022 Jan 20.
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Palliat Med. 2021 Mar;35(3):603-610. doi: 10.1177/0269216320984335. Epub 2021 Jan 11.
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