Slightam Cindie, Risbud Rashmi, Guetterman Timothy C, Nevedal Andrea L, Nelson Karin M, Piette John D, Trivedi Ranak B
Center for Innovation to Implementation, VA Palo Alto Health Care System, Menlo Park, CA, USA.
Department of Family Medicine, University of Michigan, Ann Arbor, MI, USA.
Chronic Illn. 2022 Jun;18(2):330-342. doi: 10.1177/1742395320966366. Epub 2020 Oct 28.
Heart Failure (HF) care requires substantial care coordination between patients, patients' informal caregivers, and clinicians, but few studies have examined recommendations from all three perspectives. The objective of this study was to understand and identify shared recommendations to improve HF self-care from the perspective of VA persons with HF, their caregiving partners, and clinicians.
Secondary data analysis from a study of semi-structured interviews with 16 couples (persons with HF and their caregiving partners) and 13 clinicians (physicians, nurses, other specialists) from a large Veterans Affairs (VA) hospital. Interviews were double-coded, and analyzed for themes around commonly used or recommended self-care strategies.
Three themes emerged: (1) Couples and clinicians believe that improvements are still needed to existing HF education, especially the need to be tailored to learning style and culture, (2) Couples and clinicians believe that technology can facilitate better HF self-care, and (3) Couples and clinicians believe that caregiving partners are part of the self-care team, and should be involved in care management to support the person with HF.
Recommendations from couples and clinicians address barriers to HF self-care and encourage patient-centered care.
心力衰竭（HF）护理需要患者、患者的非正式照护者和临床医生之间进行大量的护理协调，但很少有研究从这三个角度审视相关建议。本研究的目的是从患有HF的退伍军人、他们的照护伙伴以及临床医生的角度，理解并确定改善HF自我护理的共同建议。
对一家大型退伍军人事务（VA）医院的16对夫妇（患有HF的患者及其照护伙伴）和13名临床医生（医生、护士、其他专科医生）进行半结构化访谈的研究进行二次数据分析。访谈进行了双重编码，并围绕常用或推荐的自我护理策略分析主题。
出现了三个主题：（1）夫妇和临床医生认为现有HF教育仍需改进，特别是需要根据学习风格和文化进行调整，（2）夫妇和临床医生认为技术可以促进更好的HF自我护理，（3）夫妇和临床医生认为照护伙伴是自我护理团队的一部分，应参与护理管理以支持患有HF的患者。
夫妇和临床医生提出的建议解决了HF自我护理的障碍，并鼓励以患者为中心的护理。
