Kisch Annika M, Bergkvist Karin, Alvariza Anette, Årestedt Kristofer, Winterling Jeanette
Haematology Department, Lund University Hospital, Lund, Sweden.
Institute of Health Sciences, Lund University, Lund, Sweden.
Support Care Cancer. 2021 Jun;29(6):3347-3356. doi: 10.1007/s00520-020-05853-8. Epub 2020 Oct 30.
The study aimed to explore family caregivers' support needs prior to allo-HSCT, how these change over time and whether they are associated with demographic factors and caregiver outcome.
This longitudinal repeated measure study included 87 family caregivers of allo-HSCT recipients: 63% were partners, 74% women, 65% lived with the recipient, and their mean age was 54 years. They completed the 14-item Carer Support Needs Assessment Tool (CSNAT) and caregiver outcome measures (caregiver burden, anxiety, depression, preparedness for caregiving and general health) prior to allo-HSCT and 3, 6 and 16 weeks later.
The two top support needs prior to allo-HSCT were 'knowing what to expect in the future' (79%) and 'dealing with your own feelings' (70%). Several support needs were associated with younger age and not being a partner, while higher needs implied worse caregiver outcomes for at least one of the outcomes prior to transplantation. Most support needs remained the same at the last follow-up.
The findings that high support needs are often associated with worse caregiver outcomes and most support needs do not diminish over time indicate that more attention should be placed on the situation of family caregivers.
本研究旨在探讨异基因造血干细胞移植（allo-HSCT）前家庭照顾者的支持需求、这些需求如何随时间变化以及它们是否与人口统计学因素和照顾者结局相关。
这项纵向重复测量研究纳入了87名allo-HSCT受者的家庭照顾者：63%为伴侣，74%为女性，65%与受者同住，他们的平均年龄为54岁。他们在allo-HSCT前以及3周、6周和16周后完成了14项照顾者支持需求评估工具（CSNAT）和照顾者结局测量（照顾者负担、焦虑、抑郁、照顾准备情况和总体健康状况）。
allo-HSCT前两项最主要的支持需求是“了解未来会发生什么”（79%）和“处理自己的情绪”（70%）。一些支持需求与年龄较小和不是伴侣有关，而较高的需求意味着在移植前至少有一种结局的照顾者结局较差。在最后一次随访时，大多数支持需求保持不变。
高支持需求往往与较差的照顾者结局相关，且大多数支持需求不会随时间减少，这些研究结果表明应更多地关注家庭照顾者的状况。
