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终末期干预措施在患有严重疾病的非裔美国人中的应用:一项范围综述。

End-of-Life Interventions for African Americans With Serious Illness: A Scoping Review.

出版信息

J Hosp Palliat Nurs. 2021 Feb 1;23(1):9-19. doi: 10.1097/NJH.0000000000000706.

DOI:10.1097/NJH.0000000000000706
PMID:33136802
Abstract

Older African Americans (AAs) with serious illness experience disparities in advance care planning, access to palliative care and hospice, and decision-making at end of life. While culturally specific drivers of care outcomes have been identified, little has been done to standardize integration and application of targeted elements of end-of-life (EOL) interventions for AA populations. A scoping review was conducted to describe and evaluate the benefit of culturally targeted EOL interventions for AAs. A computerized search of empirical and gray literature was completed. Twelve full-text articles, 1 brief report, and 1 abstract describing a total of 14 EOL interventions for AAs with a range of serious illness were reviewed. Interventions were described relative to culturally targeted adaptations and resulting cognitive, emotional, and behavioral outcomes. Most interventions were theory-based and used psychoeducational approaches and interactive discussion and interviews. Significant improvements in psychological and behavioral outcomes were reported including knowledge and self-efficacy (n = 8); self-reported anxiety, depression, and/or well-being (n = 5); and advance care plan completion (n = 3). Few culturally tailored randomized controlled trials (n = 9) have been conducted. Preliminary results show promise for interventions using cultural adaptations. Culturally targeted intervention approaches are feasible to address EOL outcomes for AA patients and families experiencing serious illness.

摘要

老年非裔美国人(AA)在重病的预先护理计划、姑息治疗和临终关怀的获取以及生命末期的决策方面存在差异。虽然已经确定了导致护理结果差异的文化特定驱动因素,但在为 AA 人群标准化整合和应用有针对性的临终(EOL)干预措施方面做得很少。进行了范围审查,以描述和评估针对 AA 的文化定向 EOL 干预措施的益处。完成了对实证和灰色文献的计算机搜索。审查了 12 篇全文文章、1 份简短报告和 1 份摘要,共描述了 14 种针对患有各种严重疾病的 AA 的 EOL 干预措施。干预措施是相对于文化定向的适应性以及由此产生的认知、情感和行为结果来描述的。大多数干预措施都是基于理论的,并采用心理教育方法以及互动讨论和访谈。报告了心理和行为结果的显著改善,包括知识和自我效能感(n=8);自我报告的焦虑、抑郁和/或幸福感(n=5);以及预先护理计划的完成(n=3)。只有少数进行了文化适应性随机对照试验(n=9)。初步结果表明,使用文化适应性的干预措施有希望。针对 AA 患者和家属的文化定向干预方法在解决严重疾病患者的 EOL 结果方面是可行的。

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引用本文的文献

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Disparities and Racism Experienced Among Older African Americans Nearing End of Life.临终前老年非裔美国人所经历的差异与种族主义
Curr Geriatr Rep. 2021;10(4):157-166. doi: 10.1007/s13670-021-00366-6. Epub 2021 Dec 14.