Social Research with Deaf People, School of Health Sciences, The University of Manchester, Manchester, United Kingdom;
Centre for Deaf Studies, University of the Witwatersrand, Johannesburg, Johannesburg, South Africa.
Pediatrics. 2020 Nov;146(Suppl 3):S304-S309. doi: 10.1542/peds.2020-0242K.
In this article, we discuss deaf and hard of hearing (DHH) children's pragmatic difficulties and strengths from within the lived experiences of 5 hearing parents of DHH children and 5 DHH adults (one of whom is also a parent of a deaf child). We define lived experience as both a specific form of knowledge (first-hand stories from everyday life) and a unique way of knowing (reflecting and telling from insider perspectives). The parents and DHH adults involved coauthored the article alongside 2 experienced researcher-practitioners. Key themes include what pragmatic challenges feel like for a DHH person, why they arise, how they might result in longer-term consequences (such as implications for well-being) that can continue into adulthood, what might be pragmatic strengths in this population, and what might be done to ameliorate pragmatic difficulties. We end the article with reflections on the significance of individual parents and DHH adults in the coproduction and execution of research on this topic and make suggestions for future directions of inquiry.
在本文中,我们从 5 位听力正常的 DHH 儿童家长和 5 位 DHH 成年人(其中一位也是聋儿家长)的亲身经历出发,讨论了聋儿和重听儿童的语用困难和优势。我们将生活经历定义为一种特定形式的知识(来自日常生活的第一手故事)和一种独特的认知方式(从内部视角进行反思和讲述)。参与其中的家长和 DHH 成年人与两位经验丰富的研究实践人员共同撰写了这篇文章。主要主题包括 DHH 人士的语用挑战是什么感觉、它们为什么会出现、它们可能会如何导致长期后果(如对幸福感的影响),这些后果可能会持续到成年期、该人群可能存在哪些语用优势、以及可以采取哪些措施来改善语用困难。最后,我们反思了个体父母和 DHH 成年人在参与和执行该主题研究方面的重要性,并为未来的探究方向提出了建议。