Graduate School, Chung-Ang University, Seoul 06974, Korea.
Department of Nursing, Chung-Ang University, 84 Heuksuk-ro Dongjak-gu, Seoul 06974, Korea.
Int J Environ Res Public Health. 2020 Nov 9;17(21):8260. doi: 10.3390/ijerph17218260.
This study aimed to explore three male bladder cancer survivors' adjustment experiences after neobladder reconstruction. A narrative inquiry method was adopted to closely investigate the individual experiences of bladder cancer survivors and the meaning of their experiences. Three themes emerged regarding physical and mental changes resulting from neobladder reconstruction: difficulty urinating or holding urine, sexual dysfunction and sexlessness, and stress resulting from urinary incontinence. Life changes following surgery varied across each participant and included 'unwanted retirement', 'quitting drinking and leaving work', and 'beginning of a restrained life'. The theme of adjustment experience emerged, comprising 'active exploration of resolutions', 'accepting change and partial return to daily life', and 'living in line with the health condition and family wishes'. Bladder cancer survivors with a neobladder, in this study, continue to adjust to changes in the voiding mechanism, various symptoms including incontinence, and life changes even after surgical cancer resection. The findings suggest that not only therapeutic interventions, but additional interventions are also needed to assist bladder cancer survivors with adjustment, rehabilitation, and return to society. These findings are also expected to be used both to educate bladder cancer survivors with a neobladder and to develop policies to help them.
本研究旨在探讨三位接受新膀胱重建术的男性膀胱癌幸存者的适应经验。采用叙事探究法深入探讨了膀胱癌幸存者的个体经历及其经历的意义。新膀胱重建术后出现了三个与身心变化相关的主题：排尿或憋尿困难、性功能障碍和无性、尿失禁导致的压力。手术后的生活变化因每个参与者而异，包括“不想要的退休”、“戒酒离职”和“开始节制生活”。调整经验的主题出现了，包括“积极探索解决方案”、“接受变化并部分回归日常生活”和“根据健康状况和家庭意愿生活”。本研究中，接受新膀胱重建术的膀胱癌幸存者在手术切除癌症后，仍在继续适应排尿机制的变化、各种包括失禁在内的症状以及生活变化。研究结果表明，不仅需要治疗干预，还需要额外的干预措施来帮助膀胱癌幸存者进行调整、康复和重返社会。这些发现也有望用于教育接受新膀胱重建术的膀胱癌幸存者，并制定帮助他们的政策。
