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一款针对痴呆症患者的个体认知刺激疗法应用程序:Thinkability的开发与可用性研究

An Individual Cognitive Stimulation Therapy App for People With Dementia: Development and Usability Study of Thinkability.

作者信息

Rai Harleen Kaur, Schneider Justine, Orrell Martin

机构信息

Division of Psychiatry and Applied Psychology, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom.

School of Sociology and Social Policy, Law and Social Sciences Building, University of Nottingham, Nottingham, United Kingdom.

出版信息

JMIR Aging. 2020 Nov 16;3(2):e17105. doi: 10.2196/17105.

Abstract

BACKGROUND

There is a lack of technological resources for the mental stimulation and communication of people with dementia, which can be helpful in improving cognition and quality of life. Paper-based individual cognitive stimulation therapy (iCST) for people with dementia has the potential to be adapted to a touchscreen format. This can improve accessibility and provide mental stimulation using interactive features. There is a need for a rigorous and systematic approach toward development, leading to improved suitability and implementation of the intervention, so that more people can benefit from its use.

OBJECTIVE

This study aims to develop and investigate the usability of Thinkability, an iCST app that can be used by people with dementia and carers on touchscreen tablets.

METHODS

The Medical Research Council framework for evaluating complex interventions and the Centre for eHealth Research roadmap served as frameworks for the stages of intervention and technology development. The development of the iCST app itself adopted an agile approach with elements from action research. Hence, it was developed in 3 successive sprints and was evaluated by relevant stakeholders at each sprint. Sprint 1 included 2 patient and public involvement (PPI) consultation meetings, sprint 2 included 1 PPI consultation meeting, and 4 focus groups and 10 individual interviews were organized in sprint 3. A feasibility trial is currently underway.

RESULTS

The findings from each sprint were used to inform the development. Sprint 1 helped to identify the relevant evidence base and explored the attitudes of people with dementia and carers toward a potential iCST app. In sprint 2, an initial prototype was evaluated in a small PPI consultation meeting. In sprint 3, feedback was gathered through a qualitative study on the quality and perceived effectiveness of the iCST app. It was well received by people with dementia and carers. A need for more updated and personalized content was highlighted.

CONCLUSIONS

This study proves that an agile approach toward technology development involving all relevant stakeholders is effective in creating suitable technology. Adding to our previous knowledge of noncomputerized cognitive stimulation therapy, the release of the iCST app will make this psychosocial intervention accessible to more users worldwide.

摘要

背景

痴呆症患者在精神刺激和交流方面缺乏技术资源,而这有助于改善认知和生活质量。针对痴呆症患者的纸质个体认知刺激疗法(iCST)有潜力被改编为触屏形式。这可以提高可及性,并利用交互功能提供精神刺激。需要一种严谨且系统的开发方法,以提高干预措施的适用性和实施效果,使更多人能从中受益。

目的

本研究旨在开发并调查一款名为Thinkability的iCST应用程序的可用性,该应用可供痴呆症患者及其护理人员在触屏平板电脑上使用。

方法

医学研究理事会评估复杂干预措施的框架以及电子健康研究中心路线图作为干预和技术开发阶段的框架。iCST应用程序本身的开发采用了敏捷方法,并融入了行动研究的元素。因此,它分3个连续的迭代周期进行开发,每个迭代周期都由相关利益相关者进行评估。第1个迭代周期包括2次患者及公众参与(PPI)咨询会议,第2个迭代周期包括1次PPI咨询会议,第3个迭代周期组织了4次焦点小组讨论和10次个人访谈。目前正在进行一项可行性试验。

结果

每个迭代周期的结果都用于为开发提供信息。第1个迭代周期有助于确定相关证据基础,并探索痴呆症患者及其护理人员对潜在iCST应用程序的态度。在第2个迭代周期中,在一次小型PPI咨询会议上对初始原型进行了评估。在第3个迭代周期中,通过对iCST应用程序的质量和感知有效性的定性研究收集了反馈。它受到了痴呆症患者及其护理人员的好评。突出了对更新和个性化内容的需求。

结论

本研究证明,涉及所有相关利益相关者的敏捷技术开发方法在创建合适的技术方面是有效的。iCST应用程序的发布将使这种社会心理干预措施在全球范围内为更多用户所用,这进一步丰富了我们之前关于非计算机化认知刺激疗法的知识。

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