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巴西公共医疗体系中,COVID-19 大流行期间,接受生酮饮食治疗的耐药性癫痫成年患者远程医疗面临的挑战。

Challenges in telemedicine for adult patients with drug-resistant epilepsy undergoing ketogenic diet treatment during the COVID-19 pandemic in the public healthcare system in Brazil.

机构信息

Postgraduate Program in Nutrition, Universidade Federal de Santa Catarina (UFSC), Florianópolis, Santa Catarina, Brazil; Translational Nutrition Neuroscience Working Group, CNPq Directory of Research Groups, Florianópolis, Santa Catarina, Brazil.

Undergraduate student in Nutrition, Universidade Federal de Santa Catarina (UFSC), Florianópolis, Santa Catarina, Brazil; Translational Nutrition Neuroscience Working Group, CNPq Directory of Research Groups, Florianópolis, Santa Catarina, Brazil.

出版信息

Epilepsy Behav. 2020 Dec;113:107529. doi: 10.1016/j.yebeh.2020.107529. Epub 2020 Nov 21.

Abstract

Hygienic and sanitary measures and social distancing policies implemented during the new coronavirus disease - COVID-19 - pandemic have altered the care and follow-up provided by healthcare professionals for patients with chronic diseases, including patients with epilepsy (PWEs). Telemedicine has become a solution for the healthcare of PWEs in many developed countries. In this short communication, we trace a particular perspective for the application of telemedicine for PWEs undergoing ketogenic diet (KD) treatment, considering the social and economic difficulties faced by healthcare teams in resource-poor countries, such as Brazil. During the pandemic, financial strain was the main impediment to following KD. The pandemic increased socioeconomic insecurity and access to KD-related products, as well as increasing anxiety in 71% of PWE, impacting their KD treatment follow-up. The challenges of telemedicine in Brazil include not only social and economic issues but also access to food, healthcare services, and education for the population, in addition to digital inclusion.

摘要

新冠病毒病(COVID-19)大流行期间实施的卫生和卫生措施以及社会隔离政策改变了医疗保健专业人员为慢性病患者(包括癫痫患者)提供的护理和随访。远程医疗已成为许多发达国家癫痫患者医疗保健的一种解决方案。在本简短通讯中,我们针对正在接受生酮饮食(KD)治疗的癫痫患者应用远程医疗的特定观点进行了探讨,同时考虑到资源匮乏国家(如巴西)的医疗保健团队面临的社会和经济困难。在大流行期间,经济压力是遵循 KD 的主要障碍。大流行加剧了社会经济不安全状况以及 KD 相关产品的获取,同时还使 71%的癫痫患者感到焦虑,从而影响了他们的 KD 治疗随访。巴西远程医疗面临的挑战不仅包括社会和经济问题,还包括食物、医疗保健服务和人口教育的获取,以及数字包容性。

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