Psychological Medicine, University of Worcester, Henwick Grove, Worcester, WR2 6AJ, UK.
University of Oxford Department of Psychiatry, Warneford Hospital, Oxford, OX3 7JX, UK; Oxford Health NHS Foundation Trust, Warneford Hospital, Oxford, OX3 7JX, UK.
J Affect Disord. 2021 Feb 15;281:918-925. doi: 10.1016/j.jad.2020.11.034. Epub 2020 Nov 11.
Electronic self-report mood monitoring tools for individuals with bipolar disorder (BD) are rapidly emerging and predominately employ predefined symptom-based questions. Allowing individuals to additionally choose what they monitor in relation to their BD offers the unique opportunity to capture and gain a deeper insight into patient priorities in this context.
In addition to monitoring mood symptoms with two standardised self-rated questionnaires, 308 individuals with BD participating in the Bipolar Disorder Research Network True Colours electronic mood-monitoring tool for research chose to create and complete additional personalised questions. A content analysis approach was used to analyse the content of these questions.
35 categories were created based on the personalised questions with the most common being physical activity and exercise, anxiety and panic, sleep and coping/stress levels. The categories were grouped into six overarching themes 1) mental health; 2) behaviour and level of functioning; 3) physical wellbeing; 4) health behaviours; 5) active self-management; and, 6) interpersonal.
The average age of the sample was around 50 years meaning our findings may not be generalisable to younger individuals with BD.
Aspects of BD important to patients in relation to longitudinal monitoring extend well beyond mood symptoms, highlighting the limitations of solely relying on standardised questions/mood rating scales based on symptoms primarily used for diagnosis. Additional symptoms and aspects of life not necessarily useful diagnostically for BD may be more important for individuals themselves to monitor and have more meaning in capturing their own experience of changes in BD severity.
电子自我报告情绪监测工具在双相情感障碍（BD）患者中迅速涌现，主要采用基于预设症状的问题。允许个人根据自己的 BD 情况选择要监测的内容，这提供了一个独特的机会，可以捕捉到并深入了解患者在这种情况下的关注点。
除了使用两个标准化自评问卷监测情绪症状外，308 名参与双相情感障碍研究网络真实色彩电子情绪监测研究工具的 BD 患者选择创建和完成额外的个性化问题。采用内容分析方法分析这些问题的内容。
基于个性化问题创建了 35 个类别，最常见的是身体活动和锻炼、焦虑和恐慌、睡眠和应对/压力水平。这些类别被分为六个总体主题：1）心理健康；2）行为和功能水平；3）身体健康；4）健康行为；5）积极的自我管理；6）人际关系。
样本的平均年龄约为 50 岁，这意味着我们的发现可能不适用于年轻的 BD 患者。
与纵向监测相关的 BD 对患者重要的方面远远超出了情绪症状，突出了仅依赖主要用于诊断的基于症状的标准化问题/情绪评分量表的局限性。对于 BD 来说，可能不是诊断性的额外症状和生活方面可能对个人自身监测更为重要，并且在捕捉自身 BD 严重程度变化方面更有意义。
