Department of Pediatric Hematology Oncology, Super Speciality Pediatric Hospital and Post Graduate Teaching Institute, Noida, Delhi NCR, India.
Department of Pediatric Hematology Oncology, Super Speciality Pediatric Hospital and Post Graduate Teaching Institute, Noida, Delhi NCR, India.
Transfus Apher Sci. 2021 Apr;60(2):103022. doi: 10.1016/j.transci.2020.103022. Epub 2020 Nov 24.
The global pandemic caused by SARS-COV-2 infection has raised several unique concerns in the bleeding disorders community. Although the risk of COVID-19 infection is not increased in patients with inherited bleeding disorders, the indirect effects of this infection are many.
A cross sectional survey was conducted among patients registered to our centre with inherited bleeding disorders. A web-based based questionnaire was developed and shared with patients and families.
120 patients/ families answered the questionnaire completely. During the period of lockdown, many had bleeds that were left untreated due to either difficulty in travel or unavailability of treatment. The time to treatment ranged from 8 h to 15 days in those who had a bleed. 36 % faced financial difficulties and 40 % families reported losing their job or source of income during this period.
Few solutions that emerged while treating patients during this period and recommendations are discussed. Even though haemophilia has been included under the essential health services and states mandated to continue treatment for these patients despite the global crisis, patients still face challenges in terms of transport and finance.
由 SARS-CoV-2 感染引起的全球大流行给出血性疾病患者群体带来了一些独特的问题。尽管遗传性出血性疾病患者感染 COVID-19 的风险并未增加，但这种感染的间接影响却有很多。
对登记在我们中心的遗传性出血性疾病患者进行了横断面调查。我们开发了一个基于网络的问卷，并分发给患者及其家属。
共有 120 名患者/家属完整回答了问卷。在封锁期间，由于出行不便或治疗药物无法获得，许多患者的出血未能得到治疗。出现出血症状的患者中，有 36%的人在 8 小时至 15 天内接受了治疗。36%的人面临经济困难，40%的家庭在这期间失去了工作或收入来源。
在治疗这些患者期间出现了一些解决方案，讨论了相关建议。尽管在全球危机期间，各国将血友病纳入基本卫生服务并授权继续为这些患者提供治疗，但患者在交通和资金方面仍然面临挑战。
