Department of Sociology, Anthropology, Criminology, Eastern Michigan University, Ypsilanti, MI.
Department of Translational Neuroscience, Michigan State University, Grand Rapids, MI.
Ethn Dis. 2020 Nov 19;30(Suppl 2):765-774. doi: 10.18865/ed.30.S2.765. eCollection 2020.
Recruitment and retention of US ethnic groups traditionally underrepresented in research continues to pose challenges. The Michigan Center for Contextual Factors in Alzheimer's Disease (MCCFAD) engages with two underserved immigrant communities in Michigan - Middle Eastern/Arab Americans in metro-Detroit and Latinos in the Grand Rapids area - to recruit and retain two Participant Resource Pools (PRP).
We adapt an existing community-based participatory research (CBPR) approach to recruit Middle Eastern/Arab American and Latino adults of all ages for Alzheimer's disease and related dementia (ADRD) research. Using American Community Survey (2014-2018) data, we compare socio-demographic characteristics of Middle Eastern/Arab Americans and Latinos living in Michigan to our PRPs. Assessment tools and community advisory board feedback identified missteps and culturally sensitive solutions.
In the first year of MCCFAD activities, 100 Middle Eastern/Arab Americans and 117 Latinos joined the MCCFAD PRPs. Comparisons to state-level data showed that PRP participants were on average older and more likely to be female than the Middle Eastern/Arab American and Latino populations in Michigan. Further, Middle Eastern/Arab Americans in the PRP reported higher education levels while Latinos reported lower education levels than their respective statewide populations. Community partnerships/feedback identified the importance of connecting with community leaders, attending to matters of within-group diversity, as well as language and semantics.
Partnership with communities to develop culturally targeted and sensitive community health events can fill a significant gap in addressing ADRD health disparities by establishing sustainable relationships to increase participation in ADRD research.
美国传统上代表性不足的族裔群体在研究中的招募和保留仍然是一个挑战。密歇根州阿尔茨海默病情境因素研究中心（MCCFAD）与密歇根州的两个服务不足的移民社区合作，招募和保留两个参与者资源池（PRP）。
我们采用现有的社区参与式研究（CBPR）方法，招募中东/阿拉伯裔美国人和拉丁裔成年人参与阿尔茨海默病和相关痴呆症（ADRD）研究。利用美国社区调查（2014-2018 年）的数据，我们将居住在密歇根州的中东/阿拉伯裔美国人和拉丁裔的社会人口统计学特征与我们的 PRP 进行比较。评估工具和社区咨询委员会的反馈意见确定了失误和需要文化敏感处理的解决方案。
在 MCCFAD 活动的第一年，有 100 名中东/阿拉伯裔美国人和 117 名拉丁裔加入了 MCCFAD PRP。与州级数据的比较表明，PRP 参与者的平均年龄较大，女性比例高于密歇根州的中东/阿拉伯裔美国人和拉丁裔人口。此外，PRP 中的中东/阿拉伯裔美国人的受教育程度高于其各自的全州人口，而拉丁裔的受教育程度则低于其各自的全州人口。社区伙伴关系/反馈意见表明，与社区领导人建立联系、关注群体内多样性问题以及语言和语义问题非常重要。
与社区合作开展针对特定文化和敏感问题的社区健康活动，可以通过建立可持续的关系来增加 ADRD 研究的参与度，从而显著缩小 ADRD 健康差异。
