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述评:与传统结局指标相比,患者报告结局测量信息系统(PROMIS)降低了疾病特异性反应性,但 PROMIS 和传统指标确实存在相关性:鱼与熊掌不可兼得。

Editorial Commentary: Patient-Reported Outcomes Measurement Information System (PROMIS) Has Decreased Disease-Specific Responsiveness More Than Legacy Outcome Measures, But PROMIS and Legacy Measures Do Correlate: You Can't Have Your Cake and Eat It Too.

出版信息

Arthroscopy. 2020 Dec;36(12):2998-3000. doi: 10.1016/j.arthro.2020.09.008.

DOI:10.1016/j.arthro.2020.09.008
PMID:33276887
Abstract

A better understanding of hip-preservation patients lies in our ability to analyze and collect data. Collecting the appropriate outcome measures is required to improve treatments, personalize health care, and drive policy. Current research suggests legacy measures and Patient-Reported Outcomes Measurement Information System (PROMIS) measures can be used in data collection, but which measures are best? PROMIS computer-adaptive tests are an attractive outcome measure source because they allow for low-burden data capture with reduced completion times and limited floor and ceiling effects. PROMIS provides numerous reliable, sensitive, and domain-specific measurements capturing a patient's health outcomes. PROMIS has been shown to correlate with hip and other legacy outcome measures, but because PROMIS is more general than some legacy measures, it may be less responsive. PROMIS measures are applicable across a wide spectrum of health measures for our patients, including hip femoroacetabular impingement, but should not replace the legacy measure of the International Hip Outcome Tool 12. However, PROMIS should still be measured because it may allow greater comparison to studies of other conditions resulting in diminished reporting bias.

摘要

更好地了解髋关节保护患者,在于我们分析和收集数据的能力。为了改善治疗、个性化医疗保健和推动政策,需要收集适当的结果测量指标。目前的研究表明,传统的测量指标和患者报告的结果测量信息系统(PROMIS)测量指标都可以用于数据收集,但哪种测量指标最好呢?PROMIS 计算机自适应测试是一种有吸引力的结果测量指标来源,因为它们允许以较低的负担采集数据,减少完成时间,并且最小化地板效应和天花板效应。PROMIS 提供了许多可靠、敏感和特定于领域的测量指标,用于捕捉患者的健康结果。已经证明 PROMIS 与髋关节和其他传统的结果测量指标相关,但由于 PROMIS 比某些传统的测量指标更具普遍性,它可能反应性较差。PROMIS 测量指标适用于我们患者的广泛健康测量指标,包括髋关节股骨髋臼撞击症,但不应替代国际髋关节结果工具 12 的传统测量指标。然而,仍应测量 PROMIS,因为它可能允许与其他疾病的研究进行更大的比较,从而减少报告偏倚。

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