Department of Sociology, School of Public and International Affairs, and the Office of Population Research, Princeton University, Princeton, NJ, USA.
MRC/Wits Rural Public Health and Health Transitions Research Unit (Agincourt), Faculty of Health Sciences, School of Public Health, University of the Witwatersrand, South Africa.
Glob Public Health. 2022 Jan;17(1):13-25. doi: 10.1080/17441692.2020.1851743. Epub 2020 Dec 8.
The global HIV/AIDS scientific community has begun to hail the dawn of 'the End of AIDS' with widespread anti-retroviral therapy (ART) and dramatic declines in AIDS-related mortality. Drawing on community focus groups and in-depth individual interviews conducted in rural South Africa, we examine the complex unfolding of the end of AIDS in a hard-hit setting. We find that while widespread ART has led to declines in AIDS-related deaths, stigma persists and is now freshly motivated. We argue that the shifting landscape of illness in the community has produced a new interpretive lens through which to view living with HIV and dying from AIDS. Most adults have one or more chronic illnesses, and ART-managed HIV is now considered a diagnosis because it is seen as easier to manage, more responsive to medication, and less dangerous compared to diseases like cancer, hypertension, and diabetes. Viewed through this comparative lens, dying from AIDS elicits stigmatising individual blame. We find that blame persists despite community acknowledgement of structural barriers to ART adherence. Setting the ending of AIDS within its wider health context sheds light on the complexities of the epidemiological and health transitions underway in much of the developing world.
全球艾滋病科学界开始欢呼“艾滋病终结”的曙光,广泛应用抗逆转录病毒疗法(ART)和艾滋病相关死亡率的显著下降。本研究通过在南非农村进行的社区焦点小组和深入的个人访谈,考察了在受艾滋病严重影响的环境中艾滋病终结的复杂演变。我们发现,虽然广泛应用抗逆转录病毒疗法导致了艾滋病相关死亡人数的下降,但耻辱感仍然存在,并因新情况而加剧。我们认为,社区疾病状况的变化产生了一个新的解释视角,通过这个视角来看待艾滋病毒感染和艾滋病死亡。大多数成年人都患有一种或多种慢性病,而经过抗逆转录病毒药物治疗管理的艾滋病毒现在被认为是一种诊断,因为与癌症、高血压和糖尿病等疾病相比,它更容易管理、对药物更有反应、危险性更小。从这个比较的角度来看,死于艾滋病会引起污名化的个人指责。我们发现,尽管社区承认在接受抗逆转录病毒治疗方面存在结构性障碍,但指责仍然存在。将艾滋病的终结置于更广泛的健康背景下,可以阐明在发展中国家的大部分地区正在进行的流行病学和健康转型的复杂性。