Hovey Richard B
Division of Oral Health and Society, Faculty of Dentistry, McGill University, Montreal, Quebec, Canada.
J Patient Exp. 2020 Oct;7(5):645-647. doi: 10.1177/2374373520956874. Epub 2020 Sep 9.
The purpose of preparing this Feature Article was to explore and share my lived experience of living with multiple layers of chronic pain, with a diagnosis of advanced, aggressive and metastasized prostate cancer, and COVID-19. My exploration begins with the manifestations of chronic pain from a bicycling accident, psoriatic arthritis, with cancer treatments and the pain it creates during a panademic has added to the challenges of social distancing, isolation, and medical treatments. As with many patient experiences, we the person as patient outside of health care sometimes struggle to find the right words, the proper sentence structure and as Tamas writes about the expectation of others to provide, "Clean and reasonable scholarship about messy, unreasonable experiences is an exercise in alienation." I write this while living with extreme chronic pain, continue cancer treatments while the threat and additional anxiety of COVID-19 looms over me. This is my story.
撰写这篇专题文章的目的是探索并分享我在遭受多层慢性疼痛折磨时的亲身经历，我被诊断出患有晚期、侵袭性和转移性前列腺癌，同时还感染了新冠病毒。我的探索始于一次自行车事故引发的慢性疼痛、银屑病关节炎，癌症治疗及其在疫情期间造成的疼痛又增加了社交距离、隔离和医疗治疗方面的挑战。和许多患者的经历一样，作为医疗保健之外的患者，我们有时很难找到合适的词汇、恰当的句子结构，正如塔马斯所写的，他人期望提供“关于混乱、不合理经历的清晰合理的学术研究是一种疏离的行为”。我在忍受极度慢性疼痛的同时写下这些，在新冠病毒的威胁和额外焦虑笼罩着我的情况下继续进行癌症治疗。这就是我的故事。
