父母需要更多支持：一项关于等待为患中耳炎孩子进行手术干预的澳大利亚父母经历的定性研究。
Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media.
作者信息
Stephens Jacqueline H, O'Keefe Maree, Schembri Mark, Baghurst Peter A
机构信息
Discipline of Paediatrics, Adelaide Medical School, The University of Adelaide, Adelaide, South Australia, Australia.
Aboriginal Health Equity, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
出版信息
J Patient Exp. 2020 Oct;7(5):717-725. doi: 10.1177/2374373519883495. Epub 2019 Oct 22.
OBJECTIVE
To explore the experiences, expectations, and motivations of parents/caregivers of children with otitis media who were booked to undergo tympanostomy tube insertion.
METHOD
A cross-sectional cohort study was conducted using semistructured interviews with 39 parents. Interviews were conducted via telephone and analyzed for key themes.
RESULTS
Three themes emerged that incorporated a range of subthemes: (1) the impact of the child's underlying condition on the family, (2) the cues and prompts that influenced parents to seek intervention, and (3) the parents' expectations of the health-care system. The child's otitis media disrupted the day-to-day functioning of the family and the child's well-being, but despite this, the families found ways to adapt and cope. Parents were influenced by their friends, family, and medical practitioners when making treatment decisions and had differing expectations of the health-care system.
CONCLUSION
Parents need support during their child's illness to help with pressures placed on the family and also in making health-care decisions for their child. Clinicians should consider these issues when discussing treatment options with parents.
目的
探讨预定接受鼓膜置管术的中耳炎患儿家长/照料者的经历、期望和动机。
方法
采用半结构式访谈对39位家长进行横断面队列研究。通过电话进行访谈，并对关键主题进行分析。
结果
出现了三个主题，包含一系列子主题：（1）孩子的潜在病情对家庭的影响；（2）影响家长寻求干预的线索和提示；（3）家长对医疗保健系统的期望。孩子的中耳炎扰乱了家庭的日常功能和孩子的幸福，但尽管如此，家庭仍找到了适应和应对的方法。家长在做出治疗决策时受到朋友、家人和医生的影响，并且对医疗保健系统有不同的期望。
结论
在孩子患病期间，家长需要支持，以帮助应对家庭所面临的压力以及为孩子做出医疗保健决策。临床医生在与家长讨论治疗方案时应考虑这些问题。
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