Sharp Barbara, Henderson Jenny, Brown Margaret, Jack-Waugh Anna, Macrae Rhoda
Alzheimer Scotland, Edinburgh, Scotland.
University of the West of Scotland, Hamilton, Scotland.
Nurs Older People. 2020 Dec 9. doi: 10.7748/nop.2020.e1191.
Despite growing understanding in recent years of the biological, psychological, social, environmental and spiritual aspects of dementia, people with advanced dementia continue to experience inequalities in accessing healthcare capable of improving their lives. The complexities of advanced dementia challenge professional competence and demand the highest level of skilled, compassionate care. This article, the last in a series on living with advanced dementia, considers the status and direction of palliative care as it applies to people with dementia and explores contemporary issues regarding advanced dementia and end of life, with a focus on guidance for practitioners and support for best practice. It identifies that open communication, clear information and a person-centred approach adopted as early as possible in the syndrome can make this period less distressing. Crucially, people at the end of life should be offered care in line with best practice in palliative and end of life approaches.
尽管近年来人们对痴呆症的生物学、心理学、社会、环境和精神层面的认识不断加深,但晚期痴呆症患者在获得能够改善其生活的医疗保健方面仍面临不平等问题。晚期痴呆症的复杂性对专业能力构成挑战,需要最高水平的专业技能和富有同情心的护理。本文是关于晚期痴呆症患者生活系列文章的最后一篇,探讨了姑息治疗应用于痴呆症患者的现状和方向,并探讨了有关晚期痴呆症和生命终结的当代问题,重点是为从业者提供指导和支持最佳实践。文章指出,在综合征早期尽早采用开放沟通、清晰信息和以患者为中心的方法,可以使这段时期不那么痛苦。至关重要的是,应根据姑息治疗和生命终结方法的最佳实践为临终患者提供护理。