Vernon-Roberts Angharad, Gearry Richard B, Day Andrew S
Department of Pediatrics, University of Otago (Christchurch), Christchurch, New Zealand.
Department of Medicine, University of Otago (Christchurch), Christchurch, New Zealand.
Inflamm Intest Dis. 2020 Nov;5(4):205-211. doi: 10.1159/000510071. Epub 2020 Sep 16.
There is a high degree of perceived stigma among adults with inflammatory bowel disease (IBD), with up to 84% considering a social stereotype against them due to their condition. This may negatively impact their treatment adherence and quality of life, as well as practical issues such as gaining urgent access to public bathroom facilities. It has been demonstrated that higher public knowledge levels can reduce public stigma, yet little is known about the general level of understanding of IBD in the community. A study was performed to ascertain the public knowledge levels of IBD in Christchurch, New Zealand, using a validated assessment tool.
The aims of this study were to implement a validated knowledge survey (IBD-KID2) among members of the general public in Christchurch, New Zealand, and to assess the level of understanding about IBD.
Recruitment took place at a Health Research and Education showcase event at the University of Otago (Christchurch), which is a free event open to members of the public. All people over the age of 8 years were invited to participate. Demographic information was collected and the disease-specific knowledge assessment survey IBD-KID2 completed by all participants consenting to the research.
One hundred people consented to the study, and the mean age 39.9 was years (SD 20, range 12-82 years). Of these 100 participants, 71 were female and 71 had a post-secondary education. Twelve participants had a family history of IBD. The mean IBD-KID2 score was 8.7 (SD 2.9), equal to a percentage total score of 58%. No independent variable was found to be significantly associated with IBD-KID2 scores. The frequency of correct answers showed knowledge deficiencies in the areas of nutrition, treatment, growth, and the cause of IBD.
This study highlighted knowledge deficiencies among members of the general public in Christchurch, New Zealand. These topics may be addressed with awareness campaigns in order to maximise community support for adults and children with IBD.
患有炎症性肠病（IBD）的成年人普遍存在较高的耻辱感，高达84%的人认为因自身病情而受到社会刻板印象的对待。这可能会对他们的治疗依从性和生活质量产生负面影响，以及诸如难以紧急使用公共卫生间设施等实际问题。已有研究表明，公众知识水平的提高可以减少公众的耻辱感，但对于社区中对IBD的总体了解程度知之甚少。本研究使用经过验证的评估工具，对新西兰克赖斯特彻奇市公众对IBD的知识水平进行了调查。
本研究的目的是在新西兰克赖斯特彻奇市的普通公众中开展一项经过验证的知识调查（IBD-KID2），并评估对IBD的了解程度。
在奥塔哥大学（克赖斯特彻奇）举办的健康研究与教育展示活动中进行招募，该活动对公众免费开放。邀请所有8岁以上的人参加。收集了人口统计学信息，并由所有同意参与研究的参与者完成了特定疾病知识评估调查IBD-KID2。
100人同意参与研究，平均年龄为39.9岁（标准差20，范围12 - 82岁）。在这100名参与者中，71名是女性，71名拥有高等教育学历。12名参与者有IBD家族史。IBD-KID2的平均得分为8.7（标准差2.9），相当于总分百分比为58%。未发现任何自变量与IBD-KID2得分有显著关联。正确答案的频率显示在营养、治疗、生长和IBD病因等方面存在知识不足。
本研究突出了新西兰克赖斯特彻奇市普通公众中的知识不足。这些主题可以通过开展宣传活动来解决，以最大限度地获得社区对IBD成年患者和儿童的支持。
