Sarah T. Roberts, PhD, MPH, is a Research Epidemiologist, Women's Global Health Imperative, RTI International, Berkeley, California, USA. Patrick Edwards, MSc, is an Economist, Health Care Financing and Payment Program, RTI International, Research Triangle Park, North Carolina, USA. Drosin Mulenga, BSW, is a Program Officer, Population Council, Lusaka, Zambia. Nachela Chelwa, MPH, is a Monitoring, Evaluation and Implementation Research Manager, Population Council, Lusaka, Zambia. Laura Nyblade, PhD, is an RTI Fellow and Senior Technical Advisor on Stigma and Discrimination, Global Health Division, RTI International, Washington, District of Columbia, USA. Caila Brander, MSc, is a Health Researcher and Global Health Corp Fellow, Population Council, Lusaka, Zambia. Maurice Musheke, PhD, is a Social and Operations Research Manager, Population Council, Lusaka, Zambia. Michael Mbizvo, PhD, is a Senior Associate & Zambia Country Director, Population Council, Lusaka, Zambia. Sujha Subramanian, PhD, is a Senior Fellow, Public Health Research Division, RTI International, Waltham, Massachusetts, USA.
J Assoc Nurses AIDS Care. 2021;32(2):160-173. doi: 10.1097/JNC.0000000000000225.
Lack of family involvement is barrier to antiretroviral therapy adherence among adolescent girls and young women (AGYW). This study assessed family support for AGYW's engagement along the HIV care continuum to inform the design of a family-focused intervention in Lusaka, Zambia. We conducted 16 in-depth interviews and four focus group discussions with 40 AGYW living with HIV. Three strategies were identified to strengthen family support. First, emotional and instrumental support are highly valued by AGYW and should be further developed or reinforced. Second, AGYW wanted more informational support and open discussion of HIV from family, and an intervention should aim to enhance these types of support. Third, existing appraisal support reinforced anticipated stigma among AGYW and discouraged disclosure, yet participants wished for more interactions with peers living with HIV. Appraisal support should therefore be reframed to help AGYW decide to whom they should disclose and how to do so safely.
缺乏家庭参与是青少年女孩和年轻妇女（AGYW）接受抗逆转录病毒治疗的障碍。本研究评估了家庭对 AGYW 在艾滋病毒护理连续体中参与的支持情况，以为赞比亚卢萨卡的一项以家庭为重点的干预措施提供信息。我们对 40 名感染艾滋病毒的 AGYW 进行了 16 次深入访谈和 4 次焦点小组讨论。确定了三种加强家庭支持的策略。首先，AGYW 非常重视情感和实际支持，应该进一步发展或加强这些支持。其次，AGYW 希望从家庭获得更多有关艾滋病毒的信息支持和公开讨论，干预措施应旨在加强这些类型的支持。第三，现有的评价支持加剧了 AGYW 对预期耻辱的担忧，并阻碍了披露，但参与者希望与感染艾滋病毒的同龄人有更多的互动。因此，应该重新构建评价支持，以帮助 AGYW 决定向谁披露以及如何安全地披露。
