Author Affiliations: M. Louise Fitzpatrick College of Nursing, Villanova University, Pennsylvania (Drs Cantrell and Mensinger and Ms Morris and Griffith); Johns Hopkins Medicine, Sidney Kimmel Cancer Center, Baltimore, Maryland (Dr Ruble); Christiana Care Health System, Delaware (Dr Birkhoff); and Self Care Catalysts Inc, Toronto, Ontario, Canada (Dr Adams).
Cancer Nurs. 2022;45(1):61-69. doi: 10.1097/NCC.0000000000000917.
mHealth apps have been not been well tested among childhood cancer survivors (CCSs) to track physical and psychosocial functioning for improved self-management of post-treatment needs.
This pilot study had 3 aims: (1) assess the usage of the Health Storylines mHealth app; (2) examine its effect in improving self-efficacy in managing survivorship healthcare needs, health-related quality of life, and perceived illness; and (3) determine if app usage moderated the effects on the above patient-reported outcome measures among female CCSs.
Study participants accessed the Health Storylines mHealth app on their own personal device. This single-group, pilot study included 3 measurement points: baseline and 3 and 6 months after initiation of using the app.
Use of the mHealth app ranged from 0 times to 902 times. Every study participant who used the app (n = 26) also used the mental health app component of the Health Storylines app. Generalized estimating equations were fit to examine the effect of the mHealth app use on self-efficacy, perceived illness, and health-related quality of life, between baseline, 3-month follow-up, and 6-month follow-up. No statistically significant changes were evident, on average, from baseline to 3- or 6-month follow-up on any outcome. Subsequent testing of effect moderation showed differential trends for high versus low users.
Studies are needed among this clinical population to determine who will benefit and who will perceive the app as a useful aspect of their survivorship care.
Sharing mental health functioning tracked on mhealth apps with healthcare providers may inform needed interventions for young adult female CCSs.
移动健康应用程序尚未在儿童癌症幸存者 (CCS) 中进行充分测试,以跟踪身体和心理社会功能,从而改善治疗后需求的自我管理。
这项试点研究有 3 个目的:(1)评估 Health Storylines 移动健康应用程序的使用情况;(2)研究其对提高管理生存护理需求、健康相关生活质量和感知疾病的自我效能的影响;(3)确定应用程序的使用是否会调节女性 CCS 中上述患者报告结果测量的效果。
研究参与者使用自己的个人设备访问 Health Storylines 移动健康应用程序。这是一项单组试点研究,包括 3 个测量点:基线和使用应用程序后 3 个月和 6 个月。
移动健康应用程序的使用次数从 0 次到 902 次不等。每个使用应用程序的研究参与者(n=26)也使用了 Health Storylines 应用程序的心理健康应用程序组件。广义估计方程用于检验移动健康应用程序使用对自我效能、感知疾病和健康相关生活质量的影响,分别在基线、3 个月随访和 6 个月随访时进行。平均而言,从基线到 3 个月或 6 个月随访时,任何结果都没有明显的变化。随后对效果调节的测试显示,高用户和低用户的趋势存在差异。
需要在这一临床人群中进行研究,以确定哪些人将受益,哪些人会认为该应用程序是其生存护理的有用方面。
与医疗保健提供者共享移动健康应用程序上跟踪的心理健康功能可能会为年轻成年女性 CCS 的干预措施提供信息。