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[促进患有生殖问题的儿童、青少年和青年癌症患者(CAYA)平等获得医疗服务——日本区域生育力保存网络的全国性扩展]

[Promotion of Equal Access to Medical Services for Children, Adolescent and Young Adult(CAYA)Cancer Patients with Reproductive Problems-A Nationwide Expansion of the Regional Oncofertility Network in Japan].

作者信息

Takenaka Motoki, Furui Tatsuro, Takae Seido, Sugishita Yodo, Kawahara Tai, Shigematsu Kosuke, Kimura Fuminori, Horie Akihito, Hara Tetsuaki, Kato Masashi, Nishiyama Hiroyuki, Suzuki Tatsuya, Miyachi Mitsuru, Kanenishi Kenji, Kubo Komei, Nakayama Satoru, Kajiyama Hiroaki, Takai Yasushi, Suzuki Nao

机构信息

Dept. of Obstetrics and Gynecology, Gifu University Graduate School of Medicine.

出版信息

Gan To Kagaku Ryoho. 2020 Dec;47(12):1691-1696.

Abstract

OBJECTIVES

Fertility preservation is important for Children, Adolescent and Young Adult(CAYA)cancer patients. Although a regional oncofertility network was established in Japan in 2012, regional inequality persists. This study was aimed at expanding the oncofertility network throughout Japan.

METHODS

Oncologists, reproductive medicine specialists, and administrative officials from 24 regions, currently without a regional oncofertility network, conferred to discuss problems and strategies for network expansion.

RESULTS

Regional oncofertility networks had already been established in 4 of 24 regions. Consultation and support and a collaboration system between facilities and individual doctors were found in 13 and 14 regions, respectively. Regarding which organization should lead the network operation, the regions(number)chose the prefecture (10), prefectural cancer centers(10), and OB/GYN department of hospitals specializing in cancer treatment(9). Obstacles to establishing a regional oncofertility network were the lack of manpower(21), budget(19), know-how(16), and specialists( 12).

DISCUSSION

CAYA cancer patients need equal access to oncofertility networks, and a public support system is essential for preserving the fertility of cancer patients. We should organize a oncofertility network in association with prefectural administration. Medical staff training and supply of materials using the Oncofertility Consortium Japan system are required to promote the oncofertility network throughout Japan.

摘要

目的

生育力保存对儿童、青少年和青年癌症患者至关重要。尽管日本在2012年建立了一个区域肿瘤生育网络,但区域不平等现象仍然存在。本研究旨在在全日本扩大肿瘤生育网络。

方法

来自目前尚无区域肿瘤生育网络的24个地区的肿瘤学家、生殖医学专家和行政官员进行了商讨,以讨论网络扩展的问题和策略。

结果

24个地区中有4个已经建立了区域肿瘤生育网络。分别在13个和14个地区发现了咨询与支持以及机构与个体医生之间的协作系统。关于应由哪个组织牵头网络运营,各地区(数量)选择了县(10个)、县癌症中心(10个)和专门从事癌症治疗的医院妇产科(9个)。建立区域肿瘤生育网络的障碍包括缺乏人力(21个地区提及)、预算(19个地区)、专业知识(16个地区)和专家(12个地区)。

讨论

儿童、青少年和青年癌症患者需要平等地接入肿瘤生育网络,并且公共支持系统对于保存癌症患者的生育力至关重要。我们应与县级行政部门联合组织一个肿瘤生育网络。需要利用日本肿瘤生育联盟系统进行医务人员培训和物资供应,以在全日本推广肿瘤生育网络。

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