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有功能性(心因性)发作的患者的工作限制和残疾福利资格:医生意见的国际调查。

Working restrictions and disability benefits eligibility in patients with functional (psychogenic) seizures: An international survey of physicians' opinions.

机构信息

Epilepsy Research Center, Shiraz University of Medical Sciences, Shiraz, Iran; Jefferson Comprehensive Epilepsy Center, Thomas Jefferson University, Philadelphia, PA, USA.

Department of Neurology, Hospital of Merano (SABES-ASDAA), Merano-Meran, Italy.

出版信息

Epilepsy Behav. 2021 Feb;115:107678. doi: 10.1016/j.yebeh.2020.107678. Epub 2020 Dec 18.

Abstract

OBJECTIVES

In this international study, we aimed to investigate the opinions of physicians dealing with patients with functional seizures (FS) worldwide on working restrictions and disability benefits eligibility.

METHODS

International online survey of neurologists/mental health professionals from Argentina, Venezuela, Colombia, Italy, France, Iran, Iraq, United Arab Emirates (UAE), Qatar, Saudi Arabia, Georgia, and Russia.

RESULTS

Six hundred and twenty-seven physicians from 12 countries participated in the study. Working as a neurologist was a predictor to think that patients with FS should not be counseled to avoid performing all jobs or professions as long as they have active disease (OR: 0.46; 95% CI: 0.30 to 0.68; p < 0.001). Having managed more than 200 patients was associated with the opinion that patients should not be counseled to avoid performing any type of work (OR: 2.17; 95% CI: 1.02 to 4.59; p = 0.043). Working as a psychiatrist/psychologist was associated with the idea that patients with FS should be qualified for disability benefits (OR: 1.97; 95% CI: 1.21-3.21; p = 0.006), and receive these benefits lifelong (OR: 0.43; 95% CI: 0.22-0.84; p = 0.014).

CONCLUSION

Neurologists and mental health professionals have different attitudes and opinions toward working restrictions and disability benefits for patients with FS. Further studies should investigate the reasons for these differences, and propose solutions to avoid discrimination and unequal access to employment and disability benefits.

摘要

目的

在这项国际研究中,我们旨在调查全球治疗功能性癫痫(FS)患者的医生对工作限制和残疾福利资格的意见。

方法

对来自阿根廷、委内瑞拉、哥伦比亚、意大利、法国、伊朗、伊拉克、阿拉伯联合酋长国、卡塔尔、沙特阿拉伯、格鲁吉亚和俄罗斯的神经病学家/心理健康专业人员进行国际在线调查。

结果

来自 12 个国家的 627 名医生参与了这项研究。作为一名神经病学家,认为 FS 患者只要患有活动性疾病,就不应建议他们避免从事所有工作或职业(OR:0.46;95%CI:0.30 至 0.68;p<0.001)。管理超过 200 名患者与认为患者不应避免从事任何类型工作的观点相关(OR:2.17;95%CI:1.02 至 4.59;p=0.043)。作为精神科医生/心理学家,与 FS 患者应获得残疾福利的观点相关(OR:1.97;95%CI:1.21 至 3.21;p=0.006),并终身获得这些福利(OR:0.43;95%CI:0.22 至 0.84;p=0.014)。

结论

神经病学家和心理健康专业人员对 FS 患者的工作限制和残疾福利持有不同的态度和意见。进一步的研究应该调查这些差异的原因,并提出解决方案,以避免歧视和获得就业和残疾福利的不平等机会。

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