Cassim Shemana, Kidd Jacquie, Keenan Rawiri, Middleton Karen, Rolleston Anna, Hokowhitu Brendan, Firth Melissa, Aitken Denise, Wong Janice, Lawrenson Ross
Waikato Medical Research Centre, Division of Arts, Law, Psychology and Social Sciences, University of Waikato, Hamilton, New Zealand
School of Nursing, Auckland University of Technology, Auckland, New Zealand.
J Med Ethics. 2021 Jan 8. doi: 10.1136/medethics-2020-106916.
Most healthcare providers (HCPs) work from ethical principles based on a Western model of practice that may not adhere to the cultural values intrinsic to Indigenous peoples. Breaking bad news (BBN) is an important topic of ethical concern in health research. While much has been documented on BBN globally, the ethical implications of receiving bad news, from an Indigenous patient perspective in particular, is an area that requires further inquiry. This article discusses the experiences of Māori (Indigenous peoples of New Zealand) lung cancer patients and their families, in order to investigate the ethical implications of receiving bad news. Data collection occurred through 23 semistructured interviews and nine focus groups with Māori lung cancer patients and their families in four districts in the Midland Region of New Zealand: Waikato, Bay of Plenty, Lakes and Tairāwhiti. The findings of this study were categorised into two key themes: communication and context. Avenues for best practice include understanding the centrality of the HCP-patient relationship and family ties in the healthcare journey, and providing patients with the full range of viable treatment options including hope, clear advice and guidance when the situation calls for it. Overall, the findings of this study hold implications for providing culturally safe and humanistic cancer care when BBN to Māori and Indigenous patients.
大多数医疗服务提供者(HCPs)遵循基于西方医疗模式的伦理原则开展工作,而这些原则可能并不符合原住民内在的文化价值观。传达坏消息(BBN)是健康研究中一个重要的伦理关注话题。虽然全球范围内已有大量关于传达坏消息的文献记载,但从原住民患者的角度来看,尤其是接收坏消息的伦理影响,仍是一个需要进一步探究的领域。本文探讨了毛利人(新西兰原住民)肺癌患者及其家属的经历,以研究接收坏消息的伦理影响。数据收集通过对新西兰中部地区四个区(怀卡托、丰盛湾、湖泊和泰拉威提)的23名毛利肺癌患者及其家属进行半结构化访谈和9个焦点小组讨论来进行。本研究的结果分为两个关键主题:沟通和背景。最佳实践途径包括理解医疗服务提供者与患者的关系以及家庭关系在医疗过程中的核心地位,并在情况需要时为患者提供包括希望、明确建议和指导在内的所有可行治疗选择。总体而言,本研究结果对于向毛利人和原住民患者传达坏消息时提供具有文化安全性和人文关怀的癌症护理具有启示意义。