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在北昆士兰的医疗保健提供者中探索对早产儿后果的隐性偏见——一项建构主义扎根理论研究。

Exploring implicit bias in the perceived consequences of prematurity amongst health care providers in North Queensland - a constructivist grounded theory study.

机构信息

James Cook University, College of Medicine and Dentistry, Angus Smith Drive, Townsville, Australia.

Neonatal unit, Townsville University Hospital, Townsville, Australia.

出版信息

BMC Pregnancy Childbirth. 2021 Jan 13;21(1):55. doi: 10.1186/s12884-021-03539-5.

DOI:10.1186/s12884-021-03539-5
PMID:33441110
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7805144/
Abstract

BACKGROUND

A study was done to explore the attitudes of relevant health care professionals (HCP) towards the provision of intensive care for periviable and extremely premature babies.

METHODS/DESIGN: Applying a constructivist grounded theory methodology, HCP were interviewed about their attitudes towards the provision of resuscitation and intensive care for extremely premature babies. These babies are at increased risk of death and neurodisability when compared to babies of older gestations. Participants included HCP of varying disciplines at a large tertiary centre, a regional centre and a remote centre. Staff with a wide range of experience were interviewed.

RESULTS

Six categories of i) who decides, ii) culture and context of families, iii) the life ahead, iv) to treat a bit or not at all, v) following guidelines and vi) information sharing, emerged. Role specific implicit bias was found as a theoretical construct, which depended on the period for which care was provided relative to the delivery of the baby. This implicit bias is an underlying cause for the negativity seen towards extreme prematurity and is presented in this paper. HCP caring for women prior to delivery have a bias towards healthy term babies that involves overestimation of the risks of extreme prematurity, while neonatal staff were biased towards suffering in the neonatal period and paediatricians recognise positivity of outcomes regardless of neurological status of the child. The implicit bias found may explain negativity towards intensive care of periviable neonates.

CONCLUSION

Understanding the presence and origins of role specific implicit bias may enable HCP to work together to improve care for parents preparing for the delivery of extremely premature babies.

摘要

背景

本研究旨在探讨相关医护人员(HCP)对提供极早产儿和近极早产儿重症监护的态度。

方法/设计:采用建构主义扎根理论方法,对 HCP 就为极早产儿提供复苏和重症监护的态度进行了访谈。与胎龄较大的婴儿相比,这些婴儿死亡和神经发育障碍的风险更高。参与者包括大型三级中心、区域中心和偏远中心的不同专业的 HCP。采访了具有广泛经验的工作人员。

结果

出现了六个类别:i)谁来决定,ii)家庭的文化和背景,iii)未来的生活,iv)治疗一点还是不治疗,v)遵循指南,vi)信息共享。发现了特定于角色的隐性偏见,这是一个理论结构,取决于提供护理的时间相对于分娩的时间。这种隐性偏见是对极早产儿产生负面看法的根本原因,本文对此进行了介绍。在分娩前照顾妇女的 HCP 对健康足月婴儿存在偏见,这种偏见涉及对极早产儿风险的高估,而新生儿工作人员对新生儿期的痛苦存在偏见,而儿科医生则认识到无论孩子的神经状态如何,结果都是积极的。发现的隐性偏见可能解释了对近极早产儿重症监护的负面态度。

结论

了解特定角色隐性偏见的存在和来源,可以使 HCP 共同努力,改善为准备分娩极早产儿的父母提供的护理。

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本文引用的文献

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Negativity about the outcomes of extreme prematurity a persistent problem - a survey of health care professionals across the North Queensland region.对极早产儿预后的消极态度是一个持续存在的问题——对北昆士兰地区医疗保健专业人员的一项调查。
Matern Health Neonatol Perinatol. 2020 Apr 28;6:2. doi: 10.1186/s40748-020-00116-0. eCollection 2020.
2
Historical Perspectives: Shared Decision Making in the NICU.历史视角:NICU 中的共同决策。
Neoreviews. 2020 Apr;21(4):e217-e225. doi: 10.1542/neo.21-4-e217.
3
Shared decision making during antenatal counselling for anticipated extremely preterm birth.预期极早早产产前咨询期间的共同决策
Paediatr Child Health. 2019 Jul;24(4):240-249. doi: 10.1093/pch/pxy158. Epub 2018 Dec 3.
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Perspectives of time: a qualitative study of the experiences of parents of critically ill newborns in the neonatal nursery in North Queensland interviewed several years after the admission.时间视角:北昆士兰州新生儿重症监护病房危重新生儿父母入院数年后接受访谈的体验定性研究。
BMJ Open. 2019 May 14;9(5):e026344. doi: 10.1136/bmjopen-2018-026344.
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A meta-analysis of neurodevelopmental outcomes at 4-10 years in children born at 22-25 weeks gestation.一项对孕 22-25 周早产儿在 4-10 岁时神经发育结局的荟萃分析。
Acta Paediatr. 2019 Jul;108(7):1237-1244. doi: 10.1111/apa.14693. Epub 2019 Jan 18.
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Ethical Problems in Decision Making in the Neonatal ICU.新生儿重症监护病房决策中的伦理问题
N Engl J Med. 2018 Nov 8;379(19):1851-1860. doi: 10.1056/NEJMra1801063.
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Adequacy of antenatal steroids, rather than place of birth, determines survival to discharge in extreme prematurity in North Queensland.在北昆士兰,决定极早产儿出院存活率的是产前类固醇的充足程度,而非出生地点。
J Paediatr Child Health. 2019 Feb;55(2):205-212. doi: 10.1111/jpc.14184. Epub 2018 Aug 27.
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Qualitative evaluation of a guideline supporting shared decision making for extreme preterm birth.支持极早早产共享决策的指南的定性评估
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Parental Perspectives Regarding Outcomes of Very Preterm Infants: Toward a Balanced Approach.家长对极早产儿结局的看法:寻求一种平衡的方法。
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