Clinical Psychology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy.
Palliative Care, Pain Therapy and Rehabilitation Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Via Giacomo Venezian 1, 20133, Milan, Italy.
J Cancer Educ. 2022 Oct;37(5):1322-1331. doi: 10.1007/s13187-020-01954-4. Epub 2021 Jan 23.
Few studies have investigated the needs of patients with metastatic breast cancer (MBC), and none have been conducted in Italy. Three categories of needs have been identified from the literature: information, support, and practical resources. The present study aims to achieve an in-depth understanding of the patients' needs related to the MBC care pathway. In-depth interviews were conducted and analyzed by thematic analysis. The participants were 9 women with MBC (age range 36-74) who were enrolled at the Fondazione IRCCS Istituto Nazionalde dei tumori, in Milan. The analysis enabled us to identify four themes (which reflect the needs of the participants), each divided into numerous sub-themes: (1) the need for clinical recognition, (2) the need for more attention from healthcare professionals, (3) the need for more and better services to be available at the hospital, (4) the need for specific public health policies. Since the metastatic phase of breast cancer seems to elicit additional, specific needs and multi-level management, changes in attitudes and multidisciplinary practices should be tested in order to ascertain how these needs can be met.
很少有研究调查转移性乳腺癌(MBC)患者的需求,也没有在意大利进行过此类研究。文献中确定了三类需求:信息、支持和实际资源。本研究旨在深入了解与 MBC 护理途径相关的患者需求。采用主题分析方法对深度访谈进行了分析。参与者为 9 名米兰国立肿瘤研究所 Fondazione IRCCS 的 MBC 女性患者(年龄 36-74 岁)。分析结果确定了四个主题(反映了参与者的需求),每个主题又分为多个子主题:(1)临床识别需求,(2)需要医护人员更多关注,(3)需要更多更好的医院服务,(4)需要特定的公共卫生政策。由于乳腺癌的转移阶段似乎会产生额外的、特定的需求和多层次的管理,因此应该测试态度和多学科实践的改变,以确定如何满足这些需求。