Danish Epilepsy Centre Filadelfia, Dianalund, Denmark; Programa de Pós-Graduação em Ciências Médicas, Universidad Federal de Santa Catarina, Florianópolis, SC, Brazil.
Seizure. 2021 Aug;90:172-174. doi: 10.1016/j.seizure.2021.01.006. Epub 2021 Jan 27.
This essay addresses three aspects of the inside experience of epilepsy, i) the high semiological significance of subjective seizure symptoms, ii) the therapeutic consequences, both positive and negative, of subjective seizure experiences, and iii) the importance of recognizing the patient as the 'inside expert' of epilepsy. Subjective symptoms are often not spontaneously reported but ignoring them may be associated with serious risks. They can be experienced as neutral, negative or positive, and this can have important consequences for therapy. Only patients have full and first-hand knowledge of subjective symptoms but an understanding of these symptoms and an adequate response to them requires expert assistance. The inside and outside views of seizures are different but of equal importance. To get the full picture, both are needed to supplement each other.
i）主观发作症状的高度表象学意义；ii）主观发作体验的治疗后果，包括积极和消极两方面；iii）认识到患者是癫痫的“内在专家”的重要性。主观症状通常不会自发报告，但忽视它们可能会带来严重的风险。它们可以是中性的、负面的或正面的，这可能对治疗产生重要影响。只有患者对主观症状有全面和第一手的了解，但要理解这些症状并对其做出适当反应，需要专家的协助。发作的内在和外在观点不同，但同样重要。为了全面了解情况，两者都需要相互补充。
