Centro de Ciências da Saúde, Universidade Federal do Espírito Santo. Av. Marechal Campos 1468, Maruípe. 29102-770 Vitória ES Brasil.
Universidade Veiga de Almeida. Rio de Janeiro RJ Brasil.
Cien Saude Colet. 2021 Jan;26(1):147-157. doi: 10.1590/1413-81232020261.38482020. Epub 2020 Oct 9.
This is a review of the literature on family caregivers of patients with Alzheimer's disease from 2013 to 2017 available in the BVS, Scopus, and PubMed databases. The descriptors used (translated from Portuguese) were Alzheimer's disease, caregivers, elderly health, by combination. Of the 163 papers analyzed, after applying the relevance test, we selected 26 papers presented from five thematic units: 1- Literature reviews; 2- Prevalence profiles of AD caregivers; 3- Qualitative research that analyzes the feelings and sufferings of caregivers; 4- Comparative studies and objective tests; 5- Evaluation studies of intervention programs. The comprehensive and comparative analysis of the investigations highlighted differences and similarities, advantages, and disadvantages of the samples and methodologies adopted in Brazil and the US. The articles analyzed factors that influence family caregivers' impact with Alzheimer's disease, identifying the affective bonds involved, the expected reciprocity, the physical, emotional, and social costs associated with a prolonged chronic illness and requiring increasingly complex care. Family caregivers and older adults with AD require a broad, accessible, or articulated support network inside and outside the family.
这是对 2013 年至 2017 年 BVS、Scopus 和 PubMed 数据库中有关阿尔茨海默病患者家庭照顾者的文献的综述。使用的描述词（从葡萄牙语翻译而来）是阿尔茨海默病、照顾者、老年人健康、组合。在分析了 163 篇论文后，经过相关性测试，我们选择了 26 篇从五个主题单元呈现的论文：1-文献综述；2-AD 照顾者的流行率概况；3-分析照顾者感受和痛苦的定性研究；4-比较研究和客观测试；5-干预计划的评估研究。对调查的综合和比较分析突出了巴西和美国采用的样本和方法的差异和相似之处、优势和劣势。这些文章分析了影响家庭照顾者受阿尔茨海默病影响的因素，确定了所涉及的情感纽带、预期的互惠性、与长期慢性疾病相关的身体、情感和社会成本，以及需要越来越复杂的护理。家庭照顾者和患有 AD 的老年人需要一个广泛的、可及的或有组织的家庭内外支持网络。
