Departamento de Enfermagem Clínica e Cirúrgica, Escola Paulista de Enfermagem, Universidade Federal de São Paulo. R. Napoleão de Barros 754, Vila Clementino. 04024-002 São Paulo SP Brasil.
Programa de Pós-Graduação em Saúde Coletiva e de Enfermagem, Universidade de Fortaleza. Fortaleza CE Brasil.
Cien Saude Colet. 2021 Jan;26(1):27-36. doi: 10.1590/1413-81232020261.30172020. Epub 2020 Aug 21.
This paper aims to understand the experiences of family caregivers with dependent older adults in Brazil and the consequences of caring for dependent older adults in the family caregiver's life. This is a qualitative multicenter study employing dialectical hermeneutics as a theoretical framework. In-depth interviews were conducted with 84 family caregivers in Brasília, Rio de Janeiro, Belo Horizonte, Fortaleza, Teresina, Porto Alegre, and Araranguá, and Manaus. The thematic analysis yielded three categories: motivations for taking on the caregiving role, influences on the family caregiver's life, coping, and self-care modalities. The care assumed is influenced by affective relationships with older adults and ethical and moral responsibilities. The influences are related to the lack of preparation for caregiving, financial hardship, restricted freedom, and physical and mental health problems. Coping strategies were religion, spirituality, turn-taking between family caregivers, and learning about the tasks. Women predominate in caregiving due to cultural, ethical, and moral reasons. However, family caregivers often lack guidance and require protection and a support network.
本研究旨在了解巴西有依赖老年人的家庭照顾者的经历，以及家庭照顾者照顾依赖老年人对其生活的影响。这是一项采用辩证解释学作为理论框架的定性多中心研究。对来自巴西利亚、里约热内卢、贝洛奥里藏特、福塔莱萨、特雷西纳、阿雷格里港和阿腊瓜伊、马瑙斯的 84 名家庭照顾者进行了深入访谈。主题分析产生了三个类别：承担照顾角色的动机、对家庭照顾者生活的影响、应对和自我保健方式。所承担的照顾受到与老年人的情感关系以及伦理和道德责任的影响。影响与照顾准备不足、经济困难、自由受限以及身心健康问题有关。应对策略包括宗教、精神信仰、家庭照顾者之间的轮流照顾以及学习照顾任务。由于文化、伦理和道德原因，女性在照顾中占主导地位。然而，家庭照顾者往往缺乏指导，需要保护和支持网络。
