Brown Casey B, Allen Deborah, Cone Christina, Schneider Susan M
Duke Cancer Institute, Durham, North Carolina.
Duke University School of Nursing, Durham, North Carolina.
J Adv Pract Oncol. 2020 Jan-Feb;11(1):37-48. doi: 10.6004/jadpro.2020.11.1.2. Epub 2020 Jan 1.
The outcomes and survival of patients diagnosed with glioblastoma are improving due to advancements in therapy and better symptom management. Focusing on survivorship is an important initiative for these patients. A quality improvement project performed by an advanced practitioner in adults with glioblastoma evaluated the efficacy and utility of survivorship care plans (SCP). Providing patients and their families with SCPs gives them important information about their cancer, treatment, and follow-up management and care. Survivors of a glioblastoma who were receiving an oral alkylating agent and/or bevacizumab, as well as those who had completed these therapies within the past year were included. Patients had received surgery and radiation. The National Comprehensive Cancer Network (NCCN) Distress Thermometer and a pre- and postintervention survey evaluated knowledge, distress, and rate of follow-up care. Over 2 months, 18 eligible participants received the SCP with a long-term care coaching appointment with an advanced practitioner. Knowledge pertaining to long-term effects of therapy and chemotherapy regimen improved. Ratings of overall distress and patient-reported primary care follow-up remained the same. Providing patients with glioblastoma with an SCP and an educational visit can improve knowledge pertaining to their chemotherapy regimens and long-term effects of therapy. This can result in more effective long-term management and care.
由于治疗方法的进步和症状管理的改善，胶质母细胞瘤患者的治疗结果和生存率正在提高。关注患者的生存问题对这些患者来说是一项重要举措。一名成人胶质母细胞瘤高级从业者开展的质量改进项目评估了生存护理计划（SCP）的有效性和实用性。为患者及其家属提供SCP能让他们了解有关自身癌症、治疗以及后续管理和护理的重要信息。研究纳入了正在接受口服烷化剂和/或贝伐单抗治疗的胶质母细胞瘤幸存者，以及在过去一年内完成这些治疗的患者。患者均已接受手术和放疗。通过美国国立综合癌症网络（NCCN）苦恼温度计以及干预前后的调查来评估患者的知识水平、苦恼程度和后续护理率。在两个月的时间里，18名符合条件的参与者接受了SCP，并与一名高级从业者进行了长期护理指导预约。患者对治疗的长期影响和化疗方案的了解有所改善。总体苦恼评分和患者报告的初级保健随访情况保持不变。为胶质母细胞瘤患者提供SCP和教育访视可以提高他们对化疗方案及其治疗长期影响的了解。这可以带来更有效的长期管理和护理。
