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慢性肾脏病患者在肾内科门诊的认知、知识和感知。

Awareness, knowledge, and perception of chronic kidney disease patients at renal medicine outpatients' clinic.

机构信息

Department of Renal Medicine, The Royal Hospital, Muscat, Oman.

出版信息

Saudi J Kidney Dis Transpl. 2020 Nov-Dec;31(6):1351-1360. doi: 10.4103/1319-2442.308344.

Abstract

Chronic kidney disease (CKD) is a major cause of morbidity and mortality. Awareness and education of CKD patients positively influence its medical management and significantly diminish the economic burden on public health. We conducted a pretested, structured, questionnaire-based survey to assess the awareness, knowledge, and perception of CKD patients at Renal Medicine Outpatients' Clinic. The questionnaire was distributed to all CKD patients of at least one-year duration after their diagnosis. A total of 200 patients completed this study, mainly from the capital region. The mean age was 50 (17.1) years for males and 42.3 (16) years for females. The majority (74%) knew the reason for their referral to a nephrologist. Nearly 38% of the patients with CKD reported their shock and anger when informed about their kidney status by the nephrologist at the first encounter. Almost 64% of the patients reported having no knowledge of their CKD status and only 18% of the participants were aware that they were in CKD Stage 5, but according to the medical health computerized system, 44% were in CKD Stage 5. In addition, only 50% of them were aware of renal replacement therapy options. Patients and their family should receive enough information and education regarding the nature of kidney disease and the treatment options to allow them to make an informed decision about the management of their CKD. A well-informed decision-making in the treatment of CKD can provide health professionals with evidence on how to best deliver education programs for patients and their families. It may also enhance communication and improve the capacity of patient and family involvement in shared decision-making.

摘要

慢性肾脏病(CKD)是发病率和死亡率的主要原因。CKD 患者的意识和教育对其医疗管理有积极影响,并显著减轻公共卫生的经济负担。我们进行了一项预先测试的、结构化的、基于问卷的调查,以评估肾脏医学门诊 CKD 患者的意识、知识和认知。问卷分发给所有诊断后至少一年的 CKD 患者。共有 200 名患者完成了这项研究,主要来自首都地区。男性的平均年龄为 50(17.1)岁,女性为 42.3(16)岁。大多数(74%)知道他们被转介给肾病医生的原因。近 38%的 CKD 患者报告说,当他们在第一次与肾病医生会面时被告知自己的肾脏状况时,感到震惊和愤怒。近 64%的患者表示对自己的 CKD 状况一无所知,只有 18%的参与者知道自己处于 CKD 第 5 期,但根据医疗计算机系统,44%的人处于 CKD 第 5 期。此外,只有 50%的患者了解肾脏替代治疗方案。患者及其家属应获得有关肾脏疾病性质和治疗方案的足够信息和教育,以使他们能够就 CKD 的管理做出明智的决策。在 CKD 的治疗中做出明智的决策,可以为卫生专业人员提供有关如何为患者及其家属提供最佳教育计划的证据。它还可以增强沟通,并提高患者及其家属参与共同决策的能力。

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